Literature DB >> 23215761

Towards an understanding of the lives of families affected by stroke: a qualitative study of home carers.

Rosanne Cecil1, Kate Thompson, Kader Parahoo, Eilis McCaughan.   

Abstract

AIM: To explore caring and coping among carers of stroke survivors and identify factors that had an impact on their lives.
BACKGROUND: Informal carers carry the main responsibility for the care of stroke survivors in the community, which can have a detrimental effect on the health and well-being of carers. However, the circumstances of caring differ for each carer: this study identifies the diverse factors that can cause caring to be burdensome for some carers and less so for others.
DESIGN: Qualitative descriptive study.
METHODS: A convenience sample of 30 carers of stroke survivors were interviewed in 2008-2010, following hospital discharge of the stroke survivor.
RESULTS: The impact that the stroke event had on the participants of this study varied enormously. Not only did the health status and well-being of the stroke survivors vary greatly but it was also clear that many different factors had an influence on the impact of the stroke on the carer and on how each of them coped. Nine thematic categories were identified, which fell into three broad categories: (1) the impact of the stroke event on the carer; (2) the extrinsic factors that support the caring scenario; and (3) the intrinsic factors that help a carer to cope with the new role.
CONCLUSIONS: This study provided an insight into the circumstances where caring for stroke survivors takes place. These factors that have an impact on caring and carers should inform the nursing assessment of needs of carers of stroke survivors in the community.
© 2012 Blackwell Publishing Ltd.

Entities:  

Keywords:  carers; community; nursing; qualitative interviews; stroke

Mesh:

Year:  2012        PMID: 23215761     DOI: 10.1111/jan.12037

Source DB:  PubMed          Journal:  J Adv Nurs        ISSN: 0309-2402            Impact factor:   3.187


  11 in total

Review 1.  Needs of Stroke Survivors as Perceived by Their Caregivers: A Scoping Review.

Authors:  Shilpa Krishnan; Monique R Pappadis; Susan C Weller; Marsja Stearnes; Amit Kumar; Kenneth J Ottenbacher; Timothy A Reistetter
Journal:  Am J Phys Med Rehabil       Date:  2017-07       Impact factor: 2.159

2.  Needs of family caregivers of stroke patients: a longitudinal study of caregivers' perspectives.

Authors:  Pei-Chun Tsai; Ping-Keung Yip; John Jen Tai; Meei-Fang Lou
Journal:  Patient Prefer Adherence       Date:  2015-03-18       Impact factor: 2.711

Review 3.  Stroke survivors' and informal caregivers' experiences of primary care and community healthcare services - A systematic review and meta-ethnography.

Authors:  Dominika M Pindus; Ricky Mullis; Lisa Lim; Ian Wellwood; A Viona Rundell; Noor Azah Abd Aziz; Jonathan Mant
Journal:  PLoS One       Date:  2018-02-21       Impact factor: 3.240

4.  "This is our life now. Our new normal": A qualitative study of the unmet needs of carers of stroke survivors.

Authors:  Alexandra M J Denham; Olivia Wynne; Amanda L Baker; Neil J Spratt; Alyna Turner; Parker Magin; Heidi Janssen; Coralie English; Madeleine Loh; Billie Bonevski
Journal:  PLoS One       Date:  2019-05-08       Impact factor: 3.240

5.  [The first moments of the carer: The process of becoming a caregiver of a dependent elderly relative].

Authors:  Lourdes Moral-Fernández; Antonio Frías-Osuna; Sara Moreno-Cámara; Pedro A Palomino-Moral; Rafael Del-Pino-Casado
Journal:  Aten Primaria       Date:  2017-07-21       Impact factor: 1.137

6.  The Effect of Home Care for Stroke Patients and Education of Caregivers on the Caregiver Burden and Quality of Life.

Authors:  Hacer Gok Ugur; Behice Erci
Journal:  Acta Clin Croat       Date:  2019-06       Impact factor: 0.780

7.  Reflecting on experiences of care: an exploratory qualitative descriptive study of the perspectives of stroke survivors, families and staff.

Authors:  Caroline Bulsara; Rosemary Saunders; Laura Emery; Christopher Etherton-Beer
Journal:  BMJ Open       Date:  2021-12-20       Impact factor: 2.692

8.  A Socially Assistive Robot for Stroke Patients: Acceptance, Needs, and Concerns of Patients and Informal Caregivers.

Authors:  Ayelet Dembovski; Yael Amitai; Shelly Levy-Tzedek
Journal:  Front Rehabil Sci       Date:  2022-01-25

9.  Mediating effects of burden on quality of life for caregivers of first-time stroke patients discharged from the hospital within one year.

Authors:  Yu-Hsia Tsai; Meei-Fang Lou; Tsui-Hsia Feng; Tsung-Lan Chu; Ying-Jen Chen; Hsueh-Erh Liu
Journal:  BMC Neurol       Date:  2018-04-25       Impact factor: 2.474

10.  The start of caring for an elderly dependent family member: a qualitative metasynthesis.

Authors:  Lourdes Moral-Fernández; Antonio Frías-Osuna; Sara Moreno-Cámara; Pedro A Palomino-Moral; Rafael Del-Pino-Casado
Journal:  BMC Geriatr       Date:  2018-09-25       Impact factor: 3.921

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