Literature DB >> 23204881

The opportunities and obstacles in developing a vascular birthmark database for clinical and research use.

Vishal K Sharma1, Frankie Og Fraulin, A Robertson Harrop, Donald F McPhalen.   

Abstract

INTRODUCTION: Databases are useful tools in clinical settings. The authors review the benefits and challenges associated with the development and implementation of an efficient electronic database for the multidisciplinary Vascular Birthmark Clinic at the Alberta Children's Hospital, Calgary, Alberta.
METHODS: The content and structure of the database were designed using the technical expertise of a data analyst from the Calgary Health Region. Relevant clinical and demographic data fields were included with the goal of documenting ongoing care of individual patients, and facilitating future epidemiological studies of this patient population. After completion of this database, 10 challenges encountered during development were retrospectively identified. Practical solutions for these challenges are presented.
RESULTS: THE CHALLENGES IDENTIFIED DURING THE DATABASE DEVELOPMENT PROCESS INCLUDED: identification of relevant data fields; balancing simplicity and user-friendliness with complexity and comprehensive data storage; database expertise versus clinical expertise; software platform selection; linkage of data from the previous spreadsheet to a new data management system; ethics approval for the development of the database and its utilization for research studies; ensuring privacy and limited access to the database; integration of digital photographs into the database; adoption of the database by support staff in the clinic; and maintaining up-to-date entries in the database.
CONCLUSIONS: There are several challenges involved in the development of a useful and efficient clinical database. Awareness of these potential obstacles, in advance, may simplify the development of clinical databases by others in various surgical settings.

Entities:  

Keywords:  Database; Development; Epidemiological studies; Vascular birthmark

Year:  2011        PMID: 23204881      PMCID: PMC3269200     

Source DB:  PubMed          Journal:  Can J Plast Surg        ISSN: 1195-2199


  8 in total

1.  Calgary home to country's first comprehensive vascular birthmark clinic.

Authors:  B Sibbald
Journal:  CMAJ       Date:  1999-03-23       Impact factor: 8.262

Review 2.  Multiinstitutional computer database for recording nonvascular imaging-guided interventions.

Authors:  William W Mayo-Smith; Mahesh V Jayaraman; Roger S Han; Damian E Dupuy; Jonathan S Movson
Journal:  AJR Am J Roentgenol       Date:  2003-12       Impact factor: 3.959

3.  Validity of the general practice research database.

Authors:  Susan S Jick; James A Kaye; Catherine Vasilakis-Scaramozza; Luis A Garcia Rodríguez; Ana Ruigómez; Christoph R Meier; Raymond G Schlienger; Corri Black; Hershel Jick
Journal:  Pharmacotherapy       Date:  2003-05       Impact factor: 4.705

Review 4.  A review of uses of health care utilization databases for epidemiologic research on therapeutics.

Authors:  Sebastian Schneeweiss; Jerry Avorn
Journal:  J Clin Epidemiol       Date:  2005-04       Impact factor: 6.437

Review 5.  Primer: administrative health databases in observational studies of drug effects--advantages and disadvantages.

Authors:  Samy Suissa; Edeltraut Garbe
Journal:  Nat Clin Pract Rheumatol       Date:  2007-12

6.  A birthmark survey in 500 newborns: clinical observation in two northern Taiwan medical center nurseries.

Authors:  I-Hsin Shih; Jing-Yi Lin; Chien-Hsun Chen; Hong-Shang Hong
Journal:  Chang Gung Med J       Date:  2007 May-Jun

7.  Facial plastic surgery database.

Authors:  M Mendelsohn; K Conrad
Journal:  J Otolaryngol       Date:  1994-02

8.  A comparison of dermatologists', surgeons' and general practitioners' surgical management of cutaneous melanoma.

Authors:  D B McKenna; J C Marioni; R J Lee; R J Prescott; V R Doherty
Journal:  Br J Dermatol       Date:  2004-09       Impact factor: 9.302

  8 in total
  3 in total

1.  Beta-blockers for the treatment of problematic hemangiomas.

Authors:  Vishal K Sharma; Frankie Og Fraulin; Danielle O Dumestre; Lori Walker; A Robertson Harrop
Journal:  Can J Plast Surg       Date:  2013

2.  The epidemiological profile of the Vascular Birthmark Clinic at the Alberta Children's Hospital.

Authors:  Frankie Og Fraulin; Ryan K Flannigan; Vishal K Sharma; Donald F McPhalen; Robertson A Harrop
Journal:  Can J Plast Surg       Date:  2012

3.  Infantile Hemangiomas of the Lip: Complications and Need for Surgical Intervention.

Authors:  Thomas R Cawthorn; Frankie O G Fraulin; Alan Robertson Harrop
Journal:  Plast Reconstr Surg Glob Open       Date:  2019-06-19
  3 in total

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