Literature DB >> 23194167

Palliative care in the pediatric ICU: challenges and opportunities for family-centered practice.

Ardith Doorenbos1, Taryn Lindhorst, Helene Starks, Eugene Aisenberg, J Randall Curtis, Ross Hays.   

Abstract

The culture of pediatric intensive care units (PICUs) is focused on curative or life-prolonging treatments for seriously ill children. We present empirically-based approaches to family-centered palliative care that can be applied in PICUs. Palliative care in these settings is framed by larger issues related to the context of care in PICUs, the stressors experienced by families, and challenges to palliative care philosophy within this environment. Innovations from research on family-centered communication practices in adult ICU settings provide a framework for development of palliative care in PICUs and suggest avenues for social work support of critically ill children and their families.

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Mesh：

Year:  2012        PMID： 23194167      PMCID： PMC3647033          DOI： 10.1080/15524256.2012.732461

Source DB:  PubMed          Journal:  J Soc Work End Life Palliat Care        ISSN： 1552-4264


  58 in total

1.  The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life.

Authors:  Ross M Hays; Jeanette Valentine; Gerri Haynes; J Russel Geyer; Nanci Villareale; Beth McKinstry; James W Varni; Shervin S Churchill
Journal:  J Palliat Med       Date:  2006-06       Impact factor: 2.947

2.  Comfort and confidence levels of health care professionals providing pediatric palliative care in the intensive care unit.

Authors:  Barbara L Jones; McClain Sampson; Julie Greathouse; Sarah Legett; Renee A Higgerson; LeeAnn Christie
Journal:  J Soc Work End Life Palliat Care       Date:  2007

Review 3.  Issues and challenges in palliative care for children with cancer.

Authors:  Debra L Friedman; Joanne M Hilden; Kristen Powaski
Journal:  Curr Pain Headache Rep       Date:  2005-08

4.  Parental perspectives on end-of-life care in the pediatric intensive care unit.

Authors:  Elaine C Meyer; Jeffrey P Burns; John L Griffith; Robert D Truog
Journal:  Crit Care Med       Date:  2002-01       Impact factor: 7.598

5.  Communication with families facing life-threatening illness: a research-based model for family conferences.

Authors:  Iris Cohen Fineberg; Michie Kawashima; Steven M Asch
Journal:  J Palliat Med       Date:  2011-03-08       Impact factor: 2.947

Review 6.  Two decades of evidence to support implementation of the COPE program as standard practice with parents of young unexpectedly hospitalized/critically ill children and premature infants.

Authors:  Bernadette Mazurek Melnyk; Nancy Feinstein; Eileen Fairbanks
Journal:  Pediatr Nurs       Date:  2006 Sep-Oct

7.  Examining the needs of bereaved parents in the pediatric intensive care unit: a qualitative study.

Authors:  Kathleen L Meert; Sherylyn H Briller; Stephanie Myers Schim; Celia Thurston; Allison Kabel
Journal:  Death Stud       Date:  2009-09

8.  Parent bed spaces in the PICU: effect on parental stress.

Authors:  Andrea B Smith; Glenda C Hefley; K J S Anand
Journal:  Pediatr Nurs       Date:  2007 May-Jun

9.  Effect of ethics consultations on nonbeneficial life-sustaining treatments in the intensive care setting: a randomized controlled trial.

Authors:  Lawrence J Schneiderman; Todd Gilmer; Holly D Teetzel; Daniel O Dugan; Jeffrey Blustein; Ronald Cranford; Kathleen B Briggs; Glen I Komatsu; Paula Goodman-Crews; Felicia Cohn; Ernlé W D Young
Journal:  JAMA       Date:  2003-09-03       Impact factor: 56.272

10.  Parental coping and bereavement outcome after the death of a child in the pediatric intensive care unit.

Authors:  K L Meert; C S Thurston; R Thomas
Journal:  Pediatr Crit Care Med       Date:  2001-10       Impact factor: 3.624
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  3 in total

1.  Nurses' Reflections on Benefits and Challenges of Implementing Family-Centered Care in Pediatric Intensive Care Units.

Authors:  Heather Coats; Erica Bourget; Helene Starks; Taryn Lindhorst; Shigeko Saiki-Craighill; J Randall Curtis; Ross Hays; Ardith Doorenbos
Journal:  Am J Crit Care       Date:  2018-01       Impact factor: 2.228

2.  Decision-making approaches for children with life-limiting conditions: results from a qualitative phenomenological study.

Authors:  Sidharth Vemuri; Jenny Hynson; Katrina Williams; Lynn Gillam
Journal:  BMC Med Ethics       Date:  2022-05-16       Impact factor: 2.834

Review 3.  Management guidelines for paediatric patients receiving chimeric antigen receptor T cell therapy.

Authors:  Katayoun Rezvani; Sattva S Neelapu; Elizabeth J Shpall; Kris M Mahadeo; Sajad J Khazal; Hisham Abdel-Azim; Julie C Fitzgerald; Agne Taraseviciute; Catherine M Bollard; Priti Tewari; Christine Duncan; Chani Traube; David McCall; Marie E Steiner; Ira M Cheifetz; Leslie E Lehmann; Rodrigo Mejia; John M Slopis; Rajinder Bajwa; Partow Kebriaei; Paul L Martin; Jerelyn Moffet; Jennifer McArthur; Demetrios Petropoulos; Joan O'Hanlon Curry; Sarah Featherston; Jessica Foglesong; Basirat Shoberu; Alison Gulbis; Maria E Mireles; Lisa Hafemeister; Cathy Nguyen; Neena Kapoor
Journal:  Nat Rev Clin Oncol       Date:  2019-01       Impact factor: 66.675
  3 in total

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