Literature DB >> 23171310

The experiences of mothers of children with autism: managing multiple roles.

Anneleise Safe1, Annette Joosten, Matthew Molineux.   

Abstract

BACKGROUND: Mothers of children with autism experience poorer health and wellbeing compared to mothers of children with other disabilities or typically-developing children. This qualitative phenomenological study aimed to explore the daily life experiences of mothers of children with autism, and the strategies they use to manage their roles, their emotions, and their child's behaviours.
METHOD: In-depth interviews were conducted with 7 mothers and the data were analysed using interpretative phenomenological analysis.
RESULTS: Findings revealed that the mothers were challenged by the demands of their multiple roles while dealing with the paradox of accepting their child for who they were, and at the same time also desiring their typical growth and development. However, the mothers reported various strategies they used to manage their roles, their emotions, and their child's behaviours.
CONCLUSIONS: The findings indicate that health professionals working with these families must support mothers in managing various aspects of their lives, including those not directly related to their child with autism.

Entities:  

Mesh:

Year:  2012        PMID: 23171310     DOI: 10.3109/13668250.2012.736614

Source DB:  PubMed          Journal:  J Intellect Dev Disabil        ISSN: 1366-8250


  9 in total

1.  Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households.

Authors:  Tomomi McAuliffe; Reinie Cordier; Sharmila Vaz; Yvonne Thomas; Torbjorn Falkmer
Journal:  J Autism Dev Disord       Date:  2017-10

2.  Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder.

Authors:  Noa Navot; Alicia Grattan Jorgenson; Ann Vander Stoep; Karen Toth; Sara Jane Webb
Journal:  Autism       Date:  2015-09-22

3.  Mental Health and Coping in Parents of Children with Autism Spectrum Disorder (ASD) in Singapore: An Examination of Gender Role in Caring.

Authors:  Karen Qian Ping Ang; Pek Ru Loh
Journal:  J Autism Dev Disord       Date:  2019-05

4.  A meta-synthesis on parenting a child with autism.

Authors:  Khim Lynn Ooi; Yin Sin Ong; Sabrina Anne Jacob; Tahir Mehmood Khan
Journal:  Neuropsychiatr Dis Treat       Date:  2016-04-05       Impact factor: 2.570

5.  How do Parents Manage Irritability, Challenging Behaviour, Non-Compliance and Anxiety in Children with Autism Spectrum Disorders? A Meta-Synthesis.

Authors:  Elizabeth O'Nions; Francesca Happé; Kris Evers; Hannah Boonen; Ilse Noens
Journal:  J Autism Dev Disord       Date:  2018-04

6.  Parental Burden and its Correlates in Families of Children with Autism Spectrum Disorder: A Multicentre Study with Two Comparison Groups.

Authors:  Angelo Picardi; Antonella Gigantesco; Emanuele Tarolla; Vera Stoppioni; Renato Cerbo; Maurizio Cremonte; Guido Alessandri; Ilaria Lega; Franco Nardocci
Journal:  Clin Pract Epidemiol Ment Health       Date:  2018-07-31

7.  Tensions in Maternal Care for Children, Youth, and Adults With Autism Spectrum Disorder.

Authors:  David B Nicholas; Radha MacCulloch; Wendy Roberts; Lonnie Zwaigenbaum; Patricia McKeever
Journal:  Glob Qual Nurs Res       Date:  2020-02-19

8.  Lived Experiences of Mothers Raising Children with Autism in Chitwan District, Nepal.

Authors:  Sabitri Acharya; Kalpana Sharma
Journal:  Autism Res Treat       Date:  2021-11-06

9.  Parental Competence in Parents of Children with Autism Spectrum Disorder: A Systematic Review.

Authors:  Fatemeh Mohammadi; Mahnaz Rakhshan; Zahra Molazem; Mark Gillespie
Journal:  Invest Educ Enferm       Date:  2019-09
  9 in total

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