Literature DB >> 23124125

The use of focus groups to characterize symptoms in persons with multiple sclerosis.

Pamela K Newland1, Florian P Thomas, Marguerite Riley, Louise H Flick, Arleen Fearing.   

Abstract

Multiple sclerosis is a chronic neurological disease with a myriad of symptoms. Because most work has been quantitative, it is important to capture symptoms as described by patients who experience them, using a qualitative approach. The purpose of our study was to describe and identify symptoms, with emphasis on co-occurrence, using focus groups. Three focus groups were conducted (N = 16) with relapsing-remitting multiple sclerosis patients. Common symptoms, described as both singular and co-occurring, were problems with balance, cognition, vision, and heat intolerance. These findings augment past characterizations of symptoms experienced in persons with relapsing-remitting multiple sclerosis and provide evidence for future studies.

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Year:  2012        PMID: 23124125      PMCID: PMC3491575          DOI: 10.1097/JNN.0b013e318268308b

Source DB:  PubMed          Journal:  J Neurosci Nurs        ISSN: 0888-0395            Impact factor:   1.230


  28 in total

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Review 2.  Quality of life in multiple sclerosis: determinants, measurement, and use in clinical practice.

Authors:  Deborah M Miller; Rebecca Allen
Journal:  Curr Neurol Neurosci Rep       Date:  2010-09       Impact factor: 5.081

3.  The impact of pain and other symptoms on quality of life in women with relapsing-remitting multiple sclerosis.

Authors:  Pamela K Newland; Robert T Naismith; Margaret Ullione
Journal:  J Neurosci Nurs       Date:  2009-12       Impact factor: 1.230

Review 4.  Advancing the science of symptom management.

Authors:  M Dodd; S Janson; N Facione; J Faucett; E S Froelicher; J Humphreys; K Lee; C Miaskowski; K Puntillo; S Rankin; D Taylor
Journal:  J Adv Nurs       Date:  2001-03       Impact factor: 3.187

5.  Subgroups of patients with cancer with different symptom experiences and quality-of-life outcomes: a cluster analysis.

Authors:  Christine Miaskowski; Bruce A Cooper; Steven M Paul; Marylin Dodd; Kathryn Lee; Bradley E Aouizerat; Claudia West; Maria Cho; Alice Bank
Journal:  Oncol Nurs Forum       Date:  2006-09-01       Impact factor: 2.172

6.  Pain in women with relapsing-remitting multiple sclerosis and in healthy women: a comparative study.

Authors:  Pamela Newland
Journal:  J Neurosci Nurs       Date:  2008-10       Impact factor: 1.230

7.  Pain and sensory complaints in multiple sclerosis.

Authors:  A G Beiske; E D Pedersen; B Czujko; K-M Myhr
Journal:  Eur J Neurol       Date:  2004-07       Impact factor: 6.089

Review 8.  Heat reactions in multiple sclerosis: an overlooked paradigm in the study of comparative fatigue.

Authors:  Frank E Marino
Journal:  Int J Hyperthermia       Date:  2009-02       Impact factor: 3.914

9.  Symptom cluster as a predictor of physical activity in multiple sclerosis: preliminary evidence.

Authors:  Robert W Motl; Edward McAuley
Journal:  J Pain Symptom Manage       Date:  2009-03-28       Impact factor: 3.612

10.  Symptom clusters in adults with chronic health problems and cancer as a comorbidity.

Authors:  Catherine M Bender; Sandra J Engberg; Heidi S Donovan; Susan M Cohen; Martin P Houze; Margaret Q Rosenzweig; Gail A Mallory; Jacqueline Dunbar-Jacob; Susan M Sereika
Journal:  Oncol Nurs Forum       Date:  2008-01       Impact factor: 2.172

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  6 in total

1.  Understanding Drivers of Employment Changes in a Multiple Sclerosis Population.

Authors:  Karin S Coyne; Audra N Boscoe; Brooke M Currie; Amanda S Landrian; Todd L Wandstrat
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2.  Symptom Co-occurrences Associated with Smoking in Individuals with Relapsing-Remitting Multiple Sclerosis.

Authors:  Pamela Newland; Louise Flick; Hong Xian; Florian P Thomas
Journal:  Int J MS Care       Date:  2016 Jul-Aug

3.  Testing of Journal Writing for Symptom Concordance in Adults with Multiple Sclerosis.

Authors:  Pamela Newland; B Ann Bettencourt; Sarah Schares; Verna Hendricks-Ferguson
Journal:  Int J MS Care       Date:  2021-01-21

4.  Symptoms and Association with Health Outcomes in Relapsing-Remitting Multiple Sclerosis: Results of a US Patient Survey.

Authors:  Angela E Williams; Jeffrey T Vietri; Gina Isherwood; Armando Flor
Journal:  Mult Scler Int       Date:  2014-09-23

Review 5.  'It struck at the heart of who I thought I was': A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis.

Authors:  Jane Desborough; Crystal Brunoro; Anne Parkinson; Katrina Chisholm; Mark Elisha; Janet Drew; Vanessa Fanning; Christian Lueck; Anne Bruestle; Matthew Cook; Hanna Suominen; Antonio Tricoli; Adam Henschke; Christine Phillips
Journal:  Health Expect       Date:  2020-06-24       Impact factor: 3.377

Review 6.  A Qualitative Metasynthesis of the Experience of Fatigue Across Five Chronic Conditions.

Authors:  Rosario B Jaime-Lara; Brittany C Koons; Lea Ann Matura; Nancy A Hodgson; Barbara Riegel
Journal:  J Pain Symptom Manage       Date:  2019-12-20       Impact factor: 3.612

  6 in total

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