Literature DB >> 23116630

Use of national clinical databases for informing and for evaluating health care policies.

Nick Black1, Stefanie Tan.   

Abstract

Policy-makers and analysts could make use of national clinical databases either to inform or to evaluate meso-level (organisation and delivery of health care) and macro-level (national) policies. Reviewing the use of 15 of the best established databases in England, we identify and describe four published examples of each use. These show that policy-makers can either make use of the data itself or of research based on the database. For evaluating policies, the major advantages are the huge sample sizes available, the generalisability of the data, its immediate availability and historic information. The principal methodological challenges involve the need for risk adjustment and time-series analysis. Given their usefulness in the policy arena, there are several reasons why national clinical databases have not been used more, some due to a lack of 'push' by their custodians and some to the lack of 'pull' by policy-makers. Greater exploitation of these valuable resources would be facilitated by policy-makers' and custodians' increased awareness, minimisation of legal restrictions on data use, improvements in the quality of databases and a library of examples of applications to policy.
Copyright © 2012 Elsevier Ireland Ltd. All rights reserved.

Mesh:

Year:  2012        PMID: 23116630     DOI: 10.1016/j.healthpol.2012.10.007

Source DB:  PubMed          Journal:  Health Policy        ISSN: 0168-8510            Impact factor:   2.980


  6 in total

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Authors:  Prashant V Rajan; Daniel B Kramer; Aaron S Kesselheim
Journal:  Circ Cardiovasc Qual Outcomes       Date:  2015-01-06

Review 2.  Dementia registries around the globe and their applications: A systematic review.

Authors:  Karolina Krysinska; Perminder S Sachdev; John Breitner; Miia Kivipelto; Walter Kukull; Henry Brodaty
Journal:  Alzheimers Dement       Date:  2017-05-30       Impact factor: 21.566

3.  Local politico-administrative perspectives on quality improvement based on national registry data in Sweden: a qualitative study using the Consolidated Framework for Implementation Research.

Authors:  Mio Fredriksson; Ann Catrine Eldh; Sofie Vengberg; Tobias Dahlström; Christina Halford; Lars Wallin; Ulrika Winblad
Journal:  Implement Sci       Date:  2014-12-28       Impact factor: 7.327

4.  An ethnographic study of improving data collection and completeness in large-scale data exercises.

Authors:  Mary Dixon-Woods; Anne Campbell; Emma-Louise Aveling; Graham Martin
Journal:  Wellcome Open Res       Date:  2019-12-16

5.  The role of professional logics in quality register use: a realist evaluation.

Authors:  Ann-Charlott Norman; Mattias Elg; Annika Nordin; Boel Andersson Gäre; Beatrix Algurén
Journal:  BMC Health Serv Res       Date:  2020-02-11       Impact factor: 2.655

6.  Implications of response shift for micro-, meso-, and macro-level healthcare decision-making using results of patient-reported outcome measures.

Authors:  Richard Sawatzky; Jae-Yung Kwon; Ruth Barclay; Cynthia Chauhan; Lori Frank; Wilbert B van den Hout; Lene Kongsgaard Nielsen; Sandra Nolte; Mirjam A G Sprangers
Journal:  Qual Life Res       Date:  2021-03-02       Impact factor: 4.147

  6 in total

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