Literature DB >> 23110311

The fluidity of disclosure: a longitudinal exploration of women's experience and understanding of HIV disclosure in the context of pregnancy and early motherhood.

Susan Moses1, Mark Tomlinson.   

Abstract

HIV disclosure is emphasised as an important component of efforts to prevent HIV transmission, including those to prevent transmission from mother to child. Studies which approach disclosure as a dichotomous variable that is either present or absent have generated a significant body of research describing disclosure patterns, antecedents, barriers and consequences. This study joins a growing body of research which explores disclosure as a complex, selective and gradual process occurring within the context of relationships. Using a qualitative, longitudinal ethnographic approach, the study explores HIV-positive women's subjective experience of disclosure and how they make meaning and understand disclosure processes during pregnancy and early motherhood. An interpretative phenomenological analysis of field notes from participant observation and in-depth interview transcripts suggests that women may experience disclosure as a more fluid construct than previously assumed. In contrast to the traditional dichotomous and linear approach to understanding disclosure, the meaning ascribed to disclosure "events" and behaviours was changeable and even reversible over time. These shifts occurred alongside changes in women's internal, interpersonal and material worlds and served important psychological and social functions. The findings have important implications for HIV counsellors working to encourage disclosure in the context of prevention interventions.

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Year:  2012        PMID: 23110311     DOI: 10.1080/09540121.2012.736606

Source DB:  PubMed          Journal:  AIDS Care        ISSN: 0954-0121


  5 in total

1.  Factors influencing the decision-making of parental HIV disclosure: a socio-ecological approach.

Authors:  Shan Qiao; Xiaoming Li; Yuejiao Zhou; Zhiyong Shen; Zhenzhu Tang; Bonita Stanton
Journal:  AIDS       Date:  2015-06       Impact factor: 4.177

2.  Social support, stigma, and HIV disclosure among parents living with HIV in Guangxi, China.

Authors:  Yuchen Mao; Xiaoming Li; Shan Qiao; Qun Zhao; Yuejiao Zhou; Zhiyong Shen
Journal:  AIDS Care       Date:  2017-10-11

3.  Food Insecurity Screening in Pediatric Clinical Settings: A Caregivers' Perspective.

Authors:  Ellen Barnidge; Kathryn Krupsky; Gene LaBarge; Joshua Arthur
Journal:  Matern Child Health J       Date:  2020-01

4.  What's in the telling? Understanding social, psychological and clinical aspects of HIV disclosure.

Authors:  Xiaoming Li; Shan Qiao; John de Wit; Lorraine Sherr
Journal:  AIDS Care       Date:  2015

5.  Testing Positive and Disclosing in Pregnancy: A Phenomenological Study of the Experiences of Adolescents and Young Women in Maseru, Lesotho.

Authors:  Sphiwe Madiba; Mamorapeli Putsoane
Journal:  AIDS Res Treat       Date:  2020-02-12
  5 in total

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