Literature DB >> 23101728

Explicating caregiving by mothers of children with complex needs in ireland: a phenomenological study.

Honor M Nicholl1, Cecily M Begley.   

Abstract

This qualitative phenomenological study explored mothers' experiences of caring for a child with complex needs. After ethical approval was obtained, data were collected through 11 diaries and 48 interviews with 17 mothers in Ireland. Caring for a child with complex needs involves the delivery of care in an inside world of the home, the world outside the home, and a "going-between" world. Caregiving, 1 of 8 closely linked dimensions, is presented, including its 4 categories. These are normal mothering, technical caregiving, preemptive caregiving, and individualized caregiving. Professionals require a greater understanding of the experiences of mothers caring for children with complex needs at home.
Copyright © 2012 Elsevier Inc. All rights reserved.

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Year:  2011        PMID: 23101728     DOI: 10.1016/j.pedn.2011.07.003

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  6 in total

Review 1.  Children's complex care needs: a systematic concept analysis of multidisciplinary language.

Authors:  Maria Brenner; Claire Kidston; Carol Hilliard; Imelda Coyne; Jessica Eustace-Cook; Carmel Doyle; Thelma Begley; Michael J Barrett
Journal:  Eur J Pediatr       Date:  2018-08-08       Impact factor: 3.183

2.  Parents' experiences of living with, and caring for children, adolescents and young adults with Mucopolysaccharidosis (MPS).

Authors:  S Somanadhan; P J Larkin
Journal:  Orphanet J Rare Dis       Date:  2016-10-10       Impact factor: 4.123

3.  Parents' experiences of accessing respite care for children with Autism Spectrum Disorder (ASD) at the acute and primary care interface: a systematic review.

Authors:  Emma Cooke; Valerie Smith; Maria Brenner
Journal:  BMC Pediatr       Date:  2020-05-22       Impact factor: 2.125

4.  Mothers' experiences of giving medicines to children with severe and profound intellectual disabilities-The impact on time.

Authors:  Carmel Doyle
Journal:  Child Care Health Dev       Date:  2022-01-25       Impact factor: 2.943

5.  Intense parenting: a qualitative study detailing the experiences of parenting children with complex care needs.

Authors:  Roberta L Woodgate; Marie Edwards; Jacquie D Ripat; Barbara Borton; Gina Rempel
Journal:  BMC Pediatr       Date:  2015-11-26       Impact factor: 2.125

6.  Parents' perspectives of the transition to home when a child has complex technological health care needs.

Authors:  Maria Brenner; Philip J Larkin; Carol Hilliard; Des Cawley; Frances Howlin; Michael Connolly
Journal:  Int J Integr Care       Date:  2015-09-29       Impact factor: 5.120

  6 in total

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