Literature DB >> 23086045

Navigating risks and professional roles: research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities.

Zack Marshall1.   

Abstract

We examine ethical issues that emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17-26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and disclosure, (4) balancing beneficence with self-determination, and (5) role conflict for researcher-practitioners who participate in CBPR projects. Incorporating critical disability perspectives and a heightened awareness of professional role conflict into CBPR practices has the potential to foster development of more inclusive and accessible sexual health initiatives and research environments.

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Year:  2012        PMID: 23086045     DOI: 10.1525/jer.2012.7.4.20

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  3 in total

1.  Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program.

Authors:  Femke van Schelven; Eline van der Meulen; Noortje Kroeze; Marjolijn Ketelaar; Hennie Boeije
Journal:  Res Involv Engagem       Date:  2020-09-30

2.  Evaluating meaningful impact of Patient and Public Involvement: A Q methodology study among researchers and young people with a chronic condition.

Authors:  Femke van Schelven; Hennie Boeije; Jany Rademakers
Journal:  Health Expect       Date:  2021-12-28       Impact factor: 3.318

Review 3.  Patient and Public Involvement of young people with a chronic condition in projects in health and social care: A scoping review.

Authors:  Femke van Schelven; Hennie Boeije; Veerle Mariën; Jany Rademakers
Journal:  Health Expect       Date:  2020-05-05       Impact factor: 3.377

  3 in total

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