Literature DB >> 23077138

Ethical considerations when communicating a diagnosis of a fetal alcohol spectrum disorder to a child.

Michelle Todorow1, Karrela Paris, Ellen Fantus.   

Abstract

Maternal alcohol consumption during pregnancy may result in Fetal Alcohol Spectrum Disorder (FASD), which is an umbrella term used to describe a range of conditions that are associated with significant neurodevelopmental impairments. Communicating an FASD diagnosis to a child is a complex and difficult task that requires a great deal of care, particularly due to the sensitive nature of the etiology of these disorders. To the best of our knowledge, there are no formal guidelines or published materials that outline the ethical considerations specifically associated with disclosing an FASD diagnosis to a child. This paper discusses a number of ethical principles and situational factors that should be considered when communicating an FASD diagnosis, as well as some of the potential risks and benefits associated with disclosure. We also provide recommendations to assist clinicians in communicating the diagnosis in a manner that increases understanding and minimizes harm to the child. Future recommendations include the development of formalized guidelines in order to aid clinicians in carrying out this sensitive task.

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Mesh:

Year:  2012        PMID: 23077138

Source DB:  PubMed          Journal:  J Popul Ther Clin Pharmacol        ISSN: 2561-8741


  2 in total

1.  To tell or not: parental thoughts on disclosure of urologic surgery to their child.

Authors:  Christina B Ching; Douglass B Clayton; John C Thomas; John C Pope; Mark C Adams; John W Brock; Stacy T Tanaka
Journal:  Int Braz J Urol       Date:  2015 May-Jun       Impact factor: 1.541

2.  Ethical aspects of diagnosis and interventions for children with fetal alcohol Spectrum disorder (FASD) and their families.

Authors:  Gert Helgesson; Göran Bertilsson; Helena Domeij; Gunilla Fahlström; Emelie Heintz; Anders Hjern; Christina Nehlin Gordh; Viviann Nordin; Jenny Rangmar; Ann-Margret Rydell; Viveka Sundelin Wahlsten; Monica Hultcrantz
Journal:  BMC Med Ethics       Date:  2018-01-05       Impact factor: 2.652

  2 in total

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