Literature DB >> 23045221

Brief report: Service implementation and maternal distress surrounding evaluation recommendations for young children diagnosed with autism.

Zachary Warren1, Alison Vehorn, Elizabeth Dohrmann, Cassandra Newsom, Julie Lounds Taylor.   

Abstract

There is limited evidence surrounding the ability of families of children with autism spectrum disorders to access and implement recommended interventions following diagnosis. The distress a family may encounter with regard to inability to access recommended services is also poorly understood. In this study, we present preliminary data regarding implementation of clinical recommendations following autism spectrum disorder diagnosis as well as associations of implementation with maternal functioning. In total, 75 mothers of young children diagnosed with autism spectrum disorder through a university-based preschool autism clinic returned surveys regarding access to recommended services as well as maternal mental health and distress. Results indicate that while families were able to implement numerous recommendations, specific categories of intervention were less likely to be received. Challenges implementing recommended services were not related to increased maternal distress. These results suggest that despite potential barriers toward accessing some specific recommended services following diagnosis of autism spectrum disorder, many families may be quite successful in implementing many other core recommended services and that failure to access such services may not necessarily negatively impact maternal mental health and distress.

Entities:  

Keywords:  adherence; autism spectrum disorders; caregiver distress; diagnosis; service implementation

Mesh:

Year:  2012        PMID: 23045221      PMCID: PMC3943420          DOI: 10.1177/1362361312453881

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  15 in total

1.  The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders.

Authors:  L Lecavalier; S Leone; J Wiltz
Journal:  J Intellect Disabil Res       Date:  2006-03

2.  An inventory for measuring clinical anxiety: psychometric properties.

Authors:  A T Beck; N Epstein; G Brown; R A Steer
Journal:  J Consult Clin Psychol       Date:  1988-12

3.  Psychological functioning and coping among mothers of children with autism: a population-based study.

Authors:  Guillermo Montes; Jill S Halterman
Journal:  Pediatrics       Date:  2007-05       Impact factor: 7.124

4.  Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism.

Authors:  R P Hastings
Journal:  J Intellect Disabil Res       Date:  2003 May-Jun

5.  Standardizing ADOS scores for a measure of severity in autism spectrum disorders.

Authors:  Katherine Gotham; Andrew Pickles; Catherine Lord
Journal:  J Autism Dev Disord       Date:  2008-12-12

6.  Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay.

Authors:  Annette Estes; Jeffrey Munson; Geraldine Dawson; Elizabeth Koehler; Xiao-Hua Zhou; Robert Abbott
Journal:  Autism       Date:  2009-07

7.  Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders.

Authors:  Lisa A Osborne; Louise McHugh; Jo Saunders; Phil Reed
Journal:  J Autism Dev Disord       Date:  2007-11-20

Review 8.  Identification and evaluation of children with autism spectrum disorders.

Authors:  Chris Plauché Johnson; Scott M Myers
Journal:  Pediatrics       Date:  2007-10-29       Impact factor: 7.124

9.  Transition and change in adolescents and young adults with autism: longitudinal effects on maternal well-being.

Authors:  Julie Lounds; Marsha Mailick Seltzer; Jan S Greenberg; Paul T Shattuck
Journal:  Am J Ment Retard       Date:  2007-11

Review 10.  Early behavioral intervention, brain plasticity, and the prevention of autism spectrum disorder.

Authors:  Geraldine Dawson
Journal:  Dev Psychopathol       Date:  2008
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  5 in total

1.  Can Robotic Interaction Improve Joint Attention Skills?

Authors:  Zachary E Warren; Zhi Zheng; Amy R Swanson; Esubalew Bekele; Lian Zhang; Julie A Crittendon; Amy F Weitlauf; Nilanjan Sarkar
Journal:  J Autism Dev Disord       Date:  2015-11

2.  Embedding Autism Spectrum Disorder Diagnosis Within the Medical Home: Decreasing Wait Times Through Streamlined Assessment.

Authors:  Jeffrey F Hine; Catherine G Herrington; Alice M Rothman; Rachel L Mace; Barron L Patterson; Kathryn L Carlson; Zachary E Warren
Journal:  J Autism Dev Disord       Date:  2018-08

3.  Robot-Mediated Imitation Skill Training for Children With Autism.

Authors:  Zhi Zheng; Eric M Young; Amy R Swanson; Amy S Weitlauf; Zachary E Warren; Nilanjan Sarkar
Journal:  IEEE Trans Neural Syst Rehabil Eng       Date:  2015-09-03       Impact factor: 3.802

4.  Impact of robot-mediated interaction system on joint attention skills for children with autism.

Authors:  Zhi Zheng; Lian Zhang; Esubalew Bekele; Amy Swanson; Julie A Crittendon; Zachary Warren; Nilanjan Sarkar
Journal:  IEEE Int Conf Rehabil Robot       Date:  2013-06

5.  A Longitudinal RCT of P-ESDM With and Without Parental Mindfulness Based Stress Reduction: Impact on Child Outcomes.

Authors:  Amy S Weitlauf; Neill Broderick; J Alacia Stainbrook; James C Slaughter; Julie Lounds Taylor; Catherine G Herrington; Amy G Nicholson; Madeline Santulli; Kristin Dorris; LaTamara Jackson Garrett; Michelle Hopton; Amy Kinsman; Mary Morton; Ashley Vogel; Elisabeth M Dykens; A Pablo Juárez; Zachary E Warren
Journal:  J Autism Dev Disord       Date:  2022-01-18
  5 in total

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