Literature DB >> 23009055

Working with previously anonymous gamete donors and donor-conceived adults: recent practice experiences of running the DNA-based voluntary information exchange and contact register, UK DonorLink.

Marilyn Crawshaw1, Christine Gunter, Christine Tidy, Freda Atherton.   

Abstract

This article describes recent practice experiences with donor conceived adults, donors, non-donor-conceived adult children of donors using the voluntary DNA-based register, UK DonorLink. It highlights additional complexities faced when using DNA rather than paper records for searching, in particular from the risk of false positives, low chances of success and potential inclusion of biological parents' DNA. Professionals' experiences in supporting those being "linked" suggest challenges as well as rewards. Registration carries the potential to be therapeutic for donor-conceived adults and donors and to enhance their political awareness regardless of links being made. Registrants value both peer and professional support, providing the latter can respond flexibly and be delivered by staff experienced in intermediary work. Given that the majority of those affected by donor conception internationally come from anonymous donation systems, these findings are highly pertinent and argue the need for political and moral debate about such service provision.

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Year:  2013        PMID: 23009055     DOI: 10.3109/14647273.2012.731714

Source DB:  PubMed          Journal:  Hum Fertil (Camb)        ISSN: 1464-7273            Impact factor:   2.767


  5 in total

1.  Proposed legislative change mandating retrospective release of identifying information: consultation with donors and Government response.

Authors:  Karin Hammarberg; Louise Johnson; Kate Bourne; Jane Fisher; Maggie Kirkman
Journal:  Hum Reprod       Date:  2013-12-06       Impact factor: 6.918

2.  Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion.

Authors:  Marilyn Crawshaw; Ken Daniels; Damian Adams; Kate Bourne; J A P van Hooff; Wendy Kramer; Lauri Pasch; Petra Thorn
Journal:  Reprod Biomed Soc Online       Date:  2015-11-10

3.  The opposite of a step parent - The genetics without any of the emotion: 'sperm donors' reflections on identity-release donation and relatedness.

Authors:  Susanna Graham
Journal:  Reprod Biomed Soc Online       Date:  2021-06-24

4.  National survey of donor-conceived individuals who requested information about their sperm donor-experiences from 17 years of identity releases in Sweden.

Authors:  Claudia Lampic; Agneta Skoog Svanberg; Johannes Gudmundsson; Pia Leandersson; Nils-Gunnar Solensten; Ann Thurin-Kjellberg; Kjell Wånggren; Gunilla Sydsjö
Journal:  Hum Reprod       Date:  2022-03-01       Impact factor: 6.353

5.  Gamete donors' expectations and experiences of contact with their donor offspring.

Authors:  Maggie Kirkman; Kate Bourne; Jane Fisher; Louise Johnson; Karin Hammarberg
Journal:  Hum Reprod       Date:  2014-02-18       Impact factor: 6.918

  5 in total

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