Literature DB >> 23001890

Towards a new procreation ethic: the exemplary instance of cleft lip and palate.

Gaëlle Le Dref1, Bruno Grollemund, Anne Danion-Grilliat, Jean-Christophe Weber.   

Abstract

The improvement of ultrasound scan techniques is enabling ever earlier prenatal diagnosis of developmental anomalies. In France, apart from cases where the mother's life is endangered, the detection of "particularly serious" conditions, and conditions that are "incurable at the time of diagnosis" are the only instances in which a therapeutic abortion can be performed, this applying up to the 9th month of pregnancy. Thus numerous conditions, despite the fact that they cause distress or pain or are socially disabling, do not qualify for therapeutic abortion, despite sometimes pressing demands from parents aware of the difficulties in store for their child and themselves, in a society that is not very favourable towards the integration and self-fulfilment of people with a disability. Cleft lip and palate (CLP), although it can be completely treated, is one of the conditions that considerably complicates the lives of child and parents. Nevertheless, the recent scope for making very early diagnosis of CLP, before the deadline for legal voluntary abortion, has not led to any wave of abortions. CLP in France has the benefit of a exceptional care plan, targeting both the health and the integration of the individuals affected. This article sets out, via the emblematic instance of CLP, to show how present fears of an emerging "domestic" or liberal eugenic trend could become redundant if disability is addressed politically and medically, so that individuals with a disability have the same social rights as any other citizen.

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Mesh:

Year:  2013        PMID: 23001890     DOI: 10.1007/s11019-012-9437-1

Source DB:  PubMed          Journal:  Med Health Care Philos        ISSN: 1386-7423


  22 in total

Review 1.  Nonsyndromic cleft lip and palate: complex genetics and environmental effects.

Authors:  N J Prescott; R M Winter; S Malcolm
Journal:  Ann Hum Genet       Date:  2001-11       Impact factor: 1.670

2.  Genetic diagnosis of embryos: clear explanation, not rhetoric, is needed.

Authors:  Chantal Bouffard; Stéphane Viville; Bartha Maria Knoppers
Journal:  CMAJ       Date:  2009-08-17       Impact factor: 8.262

3.  [Management of cleft lip and/or palate diagnosed in utero].

Authors:  N Fischer; F Perrotin; F Tranquart; M Robert; J Lansac; G Body
Journal:  J Gynecol Obstet Biol Reprod (Paris)       Date:  1999-09

4.  Clinical and epidemiologic studies of cleft lip and palate in the Philippines.

Authors:  J C Murray; S Daack-Hirsch; K H Buetow; R Munger; L Espina; N Paglinawan; E Villanueva; J Rary; K Magee; W Magee
Journal:  Cleft Palate Craniofac J       Date:  1997-01

5.  Medical genetics on the cleft palate-craniofacial team: understanding parental preference.

Authors:  N W Berk; M L Marazita; M E Cooper
Journal:  Cleft Palate Craniofac J       Date:  1999-01

Review 6.  Genetics of cleft lip and palate: syndromic genes contribute to the incidence of non-syndromic clefts.

Authors:  Philip Stanier; Gudrun E Moore
Journal:  Hum Mol Genet       Date:  2004-01-13       Impact factor: 6.150

7.  A qualitative description of receiving a diagnosis of clefting in the prenatal or postnatal period.

Authors:  Rachel Nusbaum; Robin E Grubs; Joseph E Losee; Carla Weidman; Matthew D Ford; Mary L Marazita
Journal:  J Genet Couns       Date:  2008-05-15       Impact factor: 2.537

8.  Is the non-respect of ethical principles by health professionals during first-trimester sonographic Down syndrome screening damaging to patient autonomy?

Authors:  R Favre; V Guige; A-S Weingertner; C Vayssière; M Kohler; I Nisand; C Hervé; G Moutel
Journal:  Ultrasound Obstet Gynecol       Date:  2009-07       Impact factor: 7.299

9.  Ultrasound diagnosis of cleft lip and cleft palate before birth.

Authors:  J E Christ; M G Meininger
Journal:  Plast Reconstr Surg       Date:  1981-12       Impact factor: 4.730

10.  Effects of craniofacial birth defects on maternal functioning postinfancy.

Authors:  M L Speltz; G C Armsden; S S Clarren
Journal:  J Pediatr Psychol       Date:  1990-04
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  2 in total

1.  On prenatal diagnosis and the decision to continue or terminate a pregnancy in France: a clinical ethics study of unknown moral territories.

Authors:  Marie Gaille
Journal:  Med Health Care Philos       Date:  2016-09

2.  The impact of having a baby with cleft lip and palate on parents and on parent-baby relationship: the first French prospective multicentre study.

Authors:  Bruno Grollemund; Caroline Dissaux; Pascale Gavelle; Carla Pérez Martínez; Jimmy Mullaert; Toni Alfaiate; Antoine Guedeney
Journal:  BMC Pediatr       Date:  2020-05-18       Impact factor: 2.125

  2 in total

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