Literature DB >> 22990424

'Ambivalence' at the end of life: how to understand patients' wishes ethically.

Kathrin Ohnsorge1, Heike R Gudat Keller, Guy A M Widdershoven, Christoph Rehmann-Sutter.   

Abstract

Health-care professionals in end-of-life care are frequently confronted with patients who seem to be 'ambivalent' about treatment decisions, especially if they express a wish to die. This article investigates this phenomenon by analysing two case stories based on narrative interviews with two patients and their caregivers. First, we argue that a respectful approach to patients requires acknowledging that coexistence of opposing wishes can be part of authentic, multi-layered experiences and moral understandings at the end of life. Second, caregivers need to understand when contradictory statements point to tensions in a patient's moral experience that require support. Third, caregivers should be careful not to negatively label or even pathologize seemingly contradictory patient statements.

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Year:  2012        PMID: 22990424     DOI: 10.1177/0969733011436206

Source DB:  PubMed          Journal:  Nurs Ethics        ISSN: 0969-7330            Impact factor:   2.874


  10 in total

Review 1.  Assumptions and moral understanding of the wish to hasten death: a philosophical review of qualitative studies.

Authors:  Andrea Rodríguez-Prat; Evert van Leeuwen
Journal:  Med Health Care Philos       Date:  2018-03

2.  Spiritual well-being in long-term colorectal cancer survivors with ostomies.

Authors:  Joanna Bulkley; Carmit K McMullen; Mark C Hornbrook; Marcia Grant; Andrea Altschuler; Christopher S Wendel; Robert S Krouse
Journal:  Psychooncology       Date:  2013-06-07       Impact factor: 3.894

3.  An International Consensus Definition of the Wish to Hasten Death and Its Related Factors.

Authors:  Albert Balaguer; Cristina Monforte-Royo; Josep Porta-Sales; Alberto Alonso-Babarro; Rogelio Altisent; Amor Aradilla-Herrero; Mercedes Bellido-Pérez; William Breitbart; Carlos Centeno; Miguel Angel Cuervo; Luc Deliens; Gerrit Frerich; Chris Gastmans; Stephanie Lichtenfeld; Joaquín T Limonero; Markus A Maier; Lars Johan Materstvedt; María Nabal; Gary Rodin; Barry Rosenfeld; Tracy Schroepfer; Joaquín Tomás-Sábado; Jordi Trelis; Christian Villavicencio-Chávez; Raymond Voltz
Journal:  PLoS One       Date:  2016-01-04       Impact factor: 3.240

4.  Relational autonomy in end-of-life care ethics: a contextualized approach to real-life complexities.

Authors:  Carlos Gómez-Vírseda; Yves de Maeseneer; Chris Gastmans
Journal:  BMC Med Ethics       Date:  2020-06-30       Impact factor: 2.652

5.  Wishes to die at the end of life and subjective experience of four different typical dying trajectories. A qualitative interview study.

Authors:  Kathrin Ohnsorge; Christoph Rehmann-Sutter; Nina Streeck; Heike Gudat
Journal:  PLoS One       Date:  2019-01-17       Impact factor: 3.240

6.  The relationship between professional autonomy and moral distress among nurses working in children's units and pediatric intensive care wards.

Authors:  Zahra Sarkoohijabalbarezi; Arash Ghodousi; Elham Davaridolatabadi
Journal:  Int J Nurs Sci       Date:  2017-01-31

7.  Understanding why patients request euthanasia when it is illegal: a qualitative study in palliative care units on the personal and practical impact of euthanasia requests.

Authors:  Danièle Leboul; Anne Bousquet; Aline Chassagne; Florence Mathieu-Nicot; Ashley Ridley; Elodie Cretin; Frédéric Guirimand; Régis Aubry
Journal:  Palliat Care Soc Pract       Date:  2022-01-10

8.  Intentions in wishes to die: analysis and a typology--a report of 30 qualitative case studies of terminally ill cancer patients in palliative care.

Authors:  K Ohnsorge; H Gudat; C Rehmann-Sutter
Journal:  Psychooncology       Date:  2014-04-04       Impact factor: 3.894

9.  What a wish to die can mean: reasons, meanings and functions of wishes to die, reported from 30 qualitative case studies of terminally ill cancer patients in palliative care.

Authors:  Kathrin Ohnsorge; Heike Gudat; Christoph Rehmann-Sutter
Journal:  BMC Palliat Care       Date:  2014-07-31       Impact factor: 3.234

Review 10.  Understanding patients' experiences of the wish to hasten death: an updated and expanded systematic review and meta-ethnography.

Authors:  Andrea Rodríguez-Prat; Albert Balaguer; Andrew Booth; Cristina Monforte-Royo
Journal:  BMJ Open       Date:  2017-09-29       Impact factor: 2.692

  10 in total

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