Literature DB >> 22981141

Working together in placing the long term interests of the child at the heart of the DSD evaluation.

Ellie Magritte1.   

Abstract

This paper articulates a number of important but often ignored questions that families have during and following the diagnosis of a child with a DSD. Recounting a personal birth experience, it illustrates the urgent need for more psychological and educational support during and following diagnosis and gender assignment. Finally, the paper describes some practical strategies for raising a child living with genital difference. It urges everyone involved in the care of children with a DSD to support parents in looking beyond initial anxiety and worry and always to place the child's long term wellbeing at the very heart of the clinical decision-making and care.
Copyright © 2012. Published by Elsevier Ltd.

Entities:  

Mesh:

Year:  2012        PMID: 22981141     DOI: 10.1016/j.jpurol.2012.07.011

Source DB:  PubMed          Journal:  J Pediatr Urol        ISSN: 1477-5131            Impact factor:   1.830


  9 in total

1.  Introduction to the Special Section: Disorders of Sex Development.

Authors:  David E Sandberg; Vickie Pasterski; Nina Callens
Journal:  J Pediatr Psychol       Date:  2017-06-01

Review 2.  Transition of care for adolescents with disorders of sex development.

Authors:  Naomi S Crouch; Sarah M Creighton
Journal:  Nat Rev Endocrinol       Date:  2014-05-20       Impact factor: 43.330

Review 3.  Psychosocial implications of disorders of sex development treatment for parents.

Authors:  Amy B Wisniewski
Journal:  Curr Opin Urol       Date:  2017-01       Impact factor: 2.309

4.  "It was an overwhelming thing": parents' needs after infant diagnosis with congenital adrenal hyperplasia.

Authors:  Kyla L Boyse; Melissa Gardner; Donna J Marvicsin; David E Sandberg
Journal:  J Pediatr Nurs       Date:  2014-01-15       Impact factor: 2.145

5.  Unbiased identification of patients with disorders of sex development.

Authors:  David A Hanauer; Melissa Gardner; David E Sandberg
Journal:  PLoS One       Date:  2014-09-30       Impact factor: 3.240

6.  Society for Endocrinology UK guidance on the initial evaluation of an infant or an adolescent with a suspected disorder of sex development (Revised 2015).

Authors:  S Faisal Ahmed; John C Achermann; Wiebke Arlt; Adam Balen; Gerry Conway; Zoe Edwards; Sue Elford; Ieuan A Hughes; Louise Izatt; Nils Krone; Harriet Miles; Stuart O'Toole; Les Perry; Caroline Sanders; Margaret Simmonds; Andrew Watt; Debbie Willis
Journal:  Clin Endocrinol (Oxf)       Date:  2015-08-13       Impact factor: 3.478

7.  Navigating Surgical Decision Making in Disorders of Sex Development (DSD).

Authors:  Melissa Gardner; David E Sandberg
Journal:  Front Pediatr       Date:  2018-11-19       Impact factor: 3.418

8.  Parental Perception of Terminology of Disorders of Sex Development in Western Turkey

Authors:  Sibel Tiryaki; Ali Tekin; İsmail Yagmur; Samim Özen; Burcu Özbaran; Damla Gökşen; Şükran Darcan; İbrahim Ulman; Ali Avanoğlu
Journal:  J Clin Res Pediatr Endocrinol       Date:  2018-03-29

9.  New method for early evaluation of clitoris innervation using clitoro-perineal reflex after feminizing genitoplasty in early childhood: a pilot-study.

Authors:  Valeska Bidault; Nathalie Botto; Annabel Paye-Jaouen; Juliane Leger; Éliane Josset-Raffet; Laetitia Martinerie; Matthieu Peycelon; Alaa El-Ghoneimi
Journal:  Sci Rep       Date:  2021-03-29       Impact factor: 4.379

  9 in total

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