Literature DB >> 22973564

Addressing challenges in participatory research partnerships in the North: opening a conversation.

Rhonda M Johnson.   

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Year:  2012        PMID: 22973564      PMCID: PMC3417683          DOI: 10.3402/ijch.v71i0.18477

Source DB:  PubMed          Journal:  Int J Circumpolar Health        ISSN: 1239-9736            Impact factor:   1.228


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Interest and experience in participatory research projects has been growing for some time in the North, yet lessons learned from these complex and still evolving community campus partnerships are still rarely shared in the general peer-reviewed literature. An electronic search of this Journal's archives netted just four papers in the past five years that included Community Based Participatory Research (CBPR) among key words (1–4), and these primarily focused on results. Yet, as many know who have been engaged in such partnerships, it is often the process of engagement between diverse partners, and the local strategies created to address inevitable tensions that arise within such collaborations, which give rise to deeper understandings of shared health issues, and support novel interventions and outcomes. The recognition of potential ethical challenges unique to this type of engaged, adaptable and flexible community research is also growing (5), but this too is still fairly rare in the literature. One brief 2005 news item in the Journal linked to a variety of generic ethical guidelines for northern researchers (6), but it included no specific examples of projects that had actually used any of these guidelines, and there have been few, if any, opportunities for researchers and community partners to share in print their experiences and lessons learned. It was in this context that initial planning for this Special Issue began in Fall 2010. The original intent and call was for original research papers, as well as expository and survey papers that should inform our shared understanding of at least one of the following aspects of CBPR, with a particular focus on northern communities and projects: Defining partnerships and communities; Issue identification; Data collection and methods; Interpretation and dissemination of results; Social action/advocacy; Ethical challenges and lessons learned. Interest in the Special Issue was strong, and we received many thoughtful inquiries; manuscripts arrived in a variety of formats and in varying degrees of completion from funders, community members, students and both junior and experienced researchers. Identifying appropriate peer reviewers and fitting such diverse submissions into a traditional peer-review process while the Journal was transitioning to a new editorial team and publishing format proved challenging. We appreciate the efforts of all who prepared papers for consideration, and all those who assisted in review. This special issue includes four papers: one that describes one of the still relatively new funding streams to support CBPR partnerships around climate change and health (7); one that explores some of the challenges of data dissemination (8), and two that describe different unique aspects of youth engagement in participatory partnerships (9,10). As Susan Chatwood notes in her introductory remarks, we hope this will be the beginning, not the end of some critical and still evolving conversations about participatory partnerships in the North. We have much to learn from each other. To that end, we share two additional initiatives that might be helpful to both current and future community-academic partnerships. The Centers for Disease Control and Prevention supported the development and reliability-testing of guidelines to review and assess different aspects of participatory partnerships (11). And recently, planning began to establish a type of modified Cochrane Collaboration review of participatory health research best practices (12). This Special Issue increases the evidence-base for informed, effective and collaborative research strategies in our region. We hope it will also open some additional space for reflective professional practice and exchange, and continuing dialogue about shared challenges and successes. Northerners have much to contribute to the growing global discussion about participatory research partnerships and their potential contributions to improved health outcomes and decreased health disparities.
  10 in total

Review 1.  Suicide and alcohol-related disorders in the U.S. Arctic: boosting research to address a primary determinant of health disparities.

Authors:  James Allen; Marya Levintova; Gerald Mohatt
Journal:  Int J Circumpolar Health       Date:  2011-11-01       Impact factor: 1.228

2.  Ethical dilemmas in community-based participatory research: recommendations for institutional review boards.

Authors:  Sarah Flicker; Robb Travers; Adrian Guta; Sean McDonald; Aileen Meagher
Journal:  J Urban Health       Date:  2007-07       Impact factor: 3.671

3.  Sharing results from complex disease genetics studies: a community based participatory research approach.

Authors:  Bert B Boyer; Gerald V Mohatt; Renee L Pasker; Elaine M Drew; Kathleen K McGlone
Journal:  Int J Circumpolar Health       Date:  2007-02       Impact factor: 1.228

4.  The practical application of community-based participatory research in Greenland: initial experiences of the Greenland Sexual Health Study.

Authors:  Elizabeth Rink; Dionne Gesink Law; Ruth Montgomery-Andersen; Gert Mulvad; Anders Koch
Journal:  Int J Circumpolar Health       Date:  2009-09       Impact factor: 1.228

5.  A call for an international collaboration on participatory research for health.

Authors:  Michael T Wright; Brenda Roche; Hella von Unger; Martina Block; Bob Gardner
Journal:  Health Promot Int       Date:  2009-10-23       Impact factor: 2.483

6.  The Center for Alaska Native Health Research Study: a community-based participatory research study of obesity and chronic disease-related protective and risk factors.

Authors:  Gerald V Mohatt; Rosemarie Plaetke; Joseph Klejka; Bret Luick; Cécile Lardon; Andrea Bersamin; Scarlett Hopkins; Michelle Dondanville; Johanna Herron; Bert Boyer
Journal:  Int J Circumpolar Health       Date:  2007-02       Impact factor: 1.228

7.  Community-based participatory process--climate change and health adaptation program for Northern First Nations and Inuit in Canada.

Authors:  Diane McClymont Peace; Erin Myers
Journal:  Int J Circumpolar Health       Date:  2012-05-08       Impact factor: 1.228

8.  Challenges created by data dissemination and access restrictions when attempting to address community concerns: individual privacy versus public wellbeing.

Authors:  Amy Colquhoun; Laura Aplin; Janis Geary; Karen J Goodman; Juanita Hatcher
Journal:  Int J Circumpolar Health       Date:  2012-05-08       Impact factor: 1.228

9.  Youth researching youth: benefits, limitations and ethical considerations within a participatory research process.

Authors:  Cynthia G Jardine; Angela James
Journal:  Int J Circumpolar Health       Date:  2012-05-08       Impact factor: 1.228

10.  Being useful: achieving indigenous youth involvement in a community-based participatory research project in Alaska.

Authors:  Tara Ford; Stacy Rasmus; James Allen
Journal:  Int J Circumpolar Health       Date:  2012-05-08       Impact factor: 1.228

  10 in total
  3 in total

1.  Building on strengths in Naujaat: the process of engaging Inuit youth in suicide prevention.

Authors:  Polina Anang; Elizabeth Haqpi Naujaat Elder; Ellen Gordon; Nora Gottlieb; Maria Bronson
Journal:  Int J Circumpolar Health       Date:  2019 Jan-Dec       Impact factor: 1.228

2.  Learning to Fail Better: Reflections on the Challenges and Risks of Community-Based Participatory Mental Health Research With Inuit Youth in Nunavut.

Authors:  Polina Anang; Nora Gottlieb; Suzanne Putulik; Shelley Iguptak; Ellen Gordon
Journal:  Front Public Health       Date:  2021-03-12

3.  Impact of Assistance Programs on Indigenous Ways of Life in 12 Rural Remote Western Alaska Native Communities: Elder Perspectives Shared in Formative Work for the "Got Neqpiaq?" Project.

Authors:  Amanda K Walch; Kathryn A Ohle; Kathryn R Koller; Lucinda Alexie; Flora Lee; Lea Palmer; Jennifer Nu; Timothy K Thomas; Andrea Bersamin
Journal:  Int J Circumpolar Health       Date:  2022-12       Impact factor: 1.228

  3 in total

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