Literature DB >> 22948430

[The impact of Hungtinton's disease on the family].

M Fernández Hawrylak1, C Grau, P Trigo.   

Abstract

This article describes the structural and emotional disturbances in families with one or more members affected by Huntington's disease, according to the different symptoms, the affected member (offspring, parent) and the different stages of the disease. We consider that support services to the family should be made up of professionals who are specialists in the specific needs of the disease and who should help to plan and design individual, suitable and flexible support. This support should focus on overcoming the impact of the disease, providing relevant information, seeking practical solutions, giving emotional support, designing specific care in each case and each stage, and reducing fear of the future.

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Year:  2012        PMID: 22948430     DOI: 10.4321/s1137-66272012000200011

Source DB:  PubMed          Journal:  An Sist Sanit Navar        ISSN: 1137-6627            Impact factor:   0.829


  2 in total

1.  Examination of Huntington's disease in a Chinese family.

Authors:  Mingxia Yu; Xiaogai Li; Sanyun Wu; Ji Shen; Jiancheng Tu
Journal:  Neural Regen Res       Date:  2014-02-15       Impact factor: 5.135

2.  Economic burden of Huntington's disease in Peru.

Authors:  Gustavo Silva-Paredes; Rosa M Urbanos-Garrido; Miguel Inca-Martinez; Danielle Rabinowitz; Mario R Cornejo-Olivas
Journal:  BMC Health Serv Res       Date:  2019-12-30       Impact factor: 2.655

  2 in total

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