Literature DB >> 22943104

Issues in biomedical research: what do Hispanics think?

Angela Ulrich1, Beti Thompson, Jennifer C Livaudais, Noah Espinoza, Ana Cordova, Gloria D Coronado.   

Abstract

OBJECTIVE: To examine barriers and facilitators of biomedical research participation among Hispanics in a rural community in Washington State.
METHODS: Questionnaires addressed socio-demographics, health care access, and barriers and facilitators of participation in biomedical studies. This is a descriptive analysis of the findings.
RESULTS: Barriers include the need to care for family members (82%), fear of having to pay for research treatments (74%), cultural beliefs (65%), lack of time (75%) and trust (71%), and the degree of hassle (73%). Facilitators include having a friend/relative with the disease being researched (80%) and monetary compensation (73%).
CONCLUSION: Researchers should be mindful of these facilitators and barriers when recruiting for biomedical research studies.

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Year:  2013        PMID: 22943104      PMCID: PMC3860276          DOI: 10.5993/AJHB.37.1.9

Source DB:  PubMed          Journal:  Am J Health Behav        ISSN: 1087-3244


  18 in total

1.  Racial disparities in participation in biomedical research.

Authors:  N R Kressin; M Meterko; N J Wilson
Journal:  J Natl Med Assoc       Date:  2000-02       Impact factor: 1.798

Review 2.  Ethical issues in conducting migrant farmworker studies.

Authors:  Sharon P Cooper; Elizabeth Heitman; Erin E Fox; Beth Quill; Paula Knudson; Sheila H Zahm; Nancy MacNaughton; Roberta Ryder
Journal:  J Immigr Health       Date:  2004-01

3.  The potential impact of comparative effectiveness research on the health of minority populations.

Authors:  C Daniel Mullins; Eberechukwu Onukwugha; Jesse L Cooke; Arif Hussain; Claudia R Baquet
Journal:  Health Aff (Millwood)       Date:  2010-10-05       Impact factor: 6.301

4.  A short acculturation scale for Mexican-American populations.

Authors:  Gloria D Coronado; Beti Thompson; Dale McLerran; Stephen M Schwartz; Thomas D Koepsell
Journal:  Ethn Dis       Date:  2005       Impact factor: 1.847

5.  Ethical issues associated with conducting genetic family studies of complex disease.

Authors:  Nedal H Arar; Helen Hazuda; Rebecca Steinbach; Mazen Y Arar; Hanna E Abboud
Journal:  Ann Epidemiol       Date:  2005-10       Impact factor: 3.797

6.  The Tuskegee Legacy Project: willingness of minorities to participate in biomedical research.

Authors:  Ralph V Katz; S Steven Kegeles; Nancy R Kressin; B Lee Green; Min Qi Wang; Sherman A James; Stefanie Luise Russell; Cristina Claudio
Journal:  J Health Care Poor Underserved       Date:  2006-11

Review 7.  Latino recruitment to cancer prevention/screening trials in the Southwest: setting a research agenda.

Authors:  Linda K Larkey; Sheryl L Ogden; Sally Tenorio; Teresa Ewell
Journal:  Appl Nurs Res       Date:  2008-02       Impact factor: 2.257

8.  Addressing the challenges of Latino health research: participatory approaches in an emergent urban community.

Authors:  Iveris Luz Martinez; Olivia Carter-Pokras; Pamela Bohrer Brown
Journal:  J Natl Med Assoc       Date:  2009-09       Impact factor: 1.798

Review 9.  Strategies and stakeholders: minority recruitment in cancer genetics research.

Authors:  Rosalina D James; Joon-Ho Yu; Nora B Henrikson; Deborah J Bowen; Stephanie M Fullerton
Journal:  Community Genet       Date:  2008-04-14

10.  Ethical considerations in the design and execution of the National and Hispanic Health and Nutrition Examination Survey (HANES).

Authors:  D K Wagener
Journal:  Environ Health Perspect       Date:  1995-04       Impact factor: 9.031

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  14 in total

1.  Characterizing Community Health Workers on Research Teams: Results From the Centers for Population Health and Health Disparities.

Authors:  Sarah D Hohl; Beti Thompson; Jessica L Krok-Schoen; Rory C Weier; Molly Martin; Lee Bone; William J McCarthy; Sabrina E Noel; Beverly Garcia; Nancy E Calderón; Electra D Paskett
Journal:  Am J Public Health       Date:  2016-01-21       Impact factor: 9.308

2.  A Diversified Recruitment Approach Incorporating Social Media Leads to Research Participation Among Young Adult-Aged Female Cancer Survivors.

Authors:  Jessica R Gorman; Samantha C Roberts; Sally A Dominick; Vanessa L Malcarne; Andrew C Dietz; H Irene Su
Journal:  J Adolesc Young Adult Oncol       Date:  2014-06-01       Impact factor: 2.223

3.  Latino beliefs about biomedical research participation: a qualitative study on the U.S.-Mexico border.

Authors:  Rachel M Ceballos; Sarah Knerr; Mary Alice Scott; Sarah D Hohl; Rachel C Malen; Hugo Vilchis; Beti Thompson
Journal:  J Empir Res Hum Res Ethics       Date:  2014-08-05       Impact factor: 1.742

4.  Evaluation of a telenovela designed to improve knowledge and behavioral intentions among Hispanic patients with end-stage renal disease in Southern California.

Authors:  Myriam Forster; Jon-Patrick Allem; Nicole Mendez; Yasir Qazi; Jennifer B Unger
Journal:  Ethn Health       Date:  2015-02-04       Impact factor: 2.772

5.  Characteristics of clinical trials that require participants to be fluent in English.

Authors:  Brian L Egleston; Omar Pedraza; Yu-Ning Wong; Roland L Dunbrack; Candace L Griffin; Eric A Ross; J Robert Beck
Journal:  Clin Trials       Date:  2015-07-07       Impact factor: 2.486

6.  Hispanic Male's Perspectives of Health Behaviors Related to Weight Management.

Authors:  David O Garcia; Luis A Valdez; Steven P Hooker
Journal:  Am J Mens Health       Date:  2015-12-03

7.  Enhancing Biospecimen Knowledge Among Health Care Providers and Representatives From Community Organizations.

Authors:  Heidi M Tham; Sarah Hohl; Wade Copeland; Katherine J Briant; Leticia Márquez-Magaña; Beti Thompson
Journal:  Health Promot Pract       Date:  2016-04-26

8.  "I did it for us and I would do it again": perspectives of rural latinos on providing biospecimens for research.

Authors:  Sarah D Hohl; Claire Gonzalez; Elizabeth Carosso; Genoveva Ibarra; Beti Thompson
Journal:  Am J Public Health       Date:  2014-03-13       Impact factor: 9.308

9.  Reducing time-to-treatment in underserved Latinas with breast cancer: the Six Cities Study.

Authors:  Amelie Ramirez; Eliseo Perez-Stable; Frank Penedo; Gregory Talavera; J Emilio Carrillo; María Fernández; Alan Holden; Edgar Munoz; Sandra San Miguel; Kipling Gallion
Journal:  Cancer       Date:  2013-11-12       Impact factor: 6.860

Review 10.  Health disparities and equity in the era of COVID-19.

Authors:  Patrick Nana-Sinkam; Jennifer Kraschnewski; Ralph Sacco; Jennifer Chavez; Mona Fouad; Tamas Gal; Mona AuYoung; Asmaa Namoos; Robert Winn; Vanessa Sheppard; Giselle Corbie-Smith; Victoria Behar-Zusman
Journal:  J Clin Transl Sci       Date:  2021-03-16
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