OBJECTIVE: Despite living donor kidney transplantation (LDKT) being the optimal treatment option for patients with end-stage renal disease, we observed a significant inequality in the number of LDKT performed between patients of Dutch versus non-Dutch descent. We conducted a focus group study to explore modifiable hurdles to LDKT. METHODS: Focus group discussions and in-depth interviews were conducted among 50 end-stage renal patients. Analyses were conducted according to 'grounded theory' using Atlas.ti. RESULTS: We found nearly all patients to be in favor of LDKT (96%). However, multiple factors played a role in considering LDKT. Four potentially modifiable hurdles were derived: (1) inadequate patient education, (2) impeding cognitions and emotions, (3) restrictive social influences, and (4) suboptimal communication. With regard to solutions, we found that our patients were open to home-based group education on renal replacement therapy options (88% in favor). CONCLUSION: The study highlights the need for sensitivity and awareness of the influence of cultural factors on decision-making when discussing living donation with culturally diverse populations. PRACTICE IMPLICATIONS: Since the majority of our patients were open to a tailored group education in their own homes, we see this as an opportunity to address factors that influence equality in access to LDKT.
OBJECTIVE: Despite living donor kidney transplantation (LDKT) being the optimal treatment option for patients with end-stage renal disease, we observed a significant inequality in the number of LDKT performed between patients of Dutch versus non-Dutch descent. We conducted a focus group study to explore modifiable hurdles to LDKT. METHODS: Focus group discussions and in-depth interviews were conducted among 50 end-stage renal patients. Analyses were conducted according to 'grounded theory' using Atlas.ti. RESULTS: We found nearly all patients to be in favor of LDKT (96%). However, multiple factors played a role in considering LDKT. Four potentially modifiable hurdles were derived: (1) inadequate patient education, (2) impeding cognitions and emotions, (3) restrictive social influences, and (4) suboptimal communication. With regard to solutions, we found that our patients were open to home-based group education on renal replacement therapy options (88% in favor). CONCLUSION: The study highlights the need for sensitivity and awareness of the influence of cultural factors on decision-making when discussing living donation with culturally diverse populations. PRACTICE IMPLICATIONS: Since the majority of our patients were open to a tailored group education in their own homes, we see this as an opportunity to address factors that influence equality in access to LDKT.
Authors: Steef Redeker; Emma K Massey; Charlotte Boonstra; Jan J van Busschbach; Reinier Timman; Harald F H Brulez; Daan A A M J Hollander; Luuk B Hilbrands; Frederike Bemelman; Stefan P Berger; Jacqueline van de Wetering; René M A van den Dorpel; Margriet Dekker-Jansen; Willem Weimar; Sohal Y Ismail Journal: Transpl Int Date: 2021-09-21 Impact factor: 3.842
Authors: Leigh Anne Dageforde; Alec W Petersen; Irene D Feurer; Kerri L Cavanaugh; Kelly A Harms; Jesse M Ehrenfeld; Derek E Moore Journal: Transplantation Date: 2014-07-15 Impact factor: 4.939
Authors: Lucy A Plumb; Manish D Sinha; Anna Casula; Carol D Inward; Stephen D Marks; Fergus J Caskey; Yoav Ben-Shlomo Journal: Clin J Am Soc Nephrol Date: 2021-01-19 Impact factor: 8.237
Authors: Sohal Y Ismail; Annemarie E Luchtenburg; Willij C Zuidema; Charlotte Boonstra; Willem Weimar; Emma K Massey; Jan J Busschbach Journal: BMC Nephrol Date: 2012-07-23 Impact factor: 2.388
Authors: Andreas Kronbichler; Maria Effenberger; Jae Il Shin; Christian Koppelstätter; Sara Denicolò; Michael Rudnicki; Hannes Neuwirt; Maria José Soler; Kate Stevens; Annette Bruchfeld; Herbert Tilg; Gert Mayer; Paul Perco Journal: J Clin Med Date: 2020-04-07 Impact factor: 4.241
Authors: Steef Redeker; Mark Oppe; Martijn Visser; Jan J V Busschbach; Willem Weimar; Emma Massey; Sohal Ismail Journal: BMJ Open Date: 2019-03-23 Impact factor: 2.692
Authors: Shaifali Sandal; Kathleen Charlebois; Julio F Fiore; David Kenneth Wright; Marie-Chantal Fortin; Liane S Feldman; Ahsan Alam; Catherine Weber Journal: Can J Kidney Health Dis Date: 2019-02-13