Literature DB >> 22900414

The law of genomic sovereignty and the protection of "Mexican genetic patrimony".

Ernesto Schwartz-Marín1, Alberto Arellano Méndez.   

Abstract

We present a socio-legal analysis of the policy agenda known as genomic sovereignty in Mexico--in which the notion was first coined--and its translation into a national law of health aimed at regulating population genomics research in the country. Based in more than 2 years of participant observation we sustain that the notion of genomic sovereignty, aimed at protecting the "unique" genetic patterns of populations needs to be critically reassessed. The main problem with such notion is that there are no scientifically sound ways to delimit the genetic "uniqueness" of any population in the world. Arising from this dilemma it becomes increasingly clear that the patrimonial doctrines that have been used to regulate population genomics in Mexico are inoperative, and rather than creating a legal environment in which medical genomics can become a national public good, it has created a law that has been used to monopolise human genomic research in the country; making blood samples and data tool for dispute amongst scientific elites.

Entities:  

Mesh:

Year:  2012        PMID: 22900414

Source DB:  PubMed          Journal:  Med Law        ISSN: 0723-1393


  3 in total

1.  Confidentiality and data sharing: vulnerabilities of the Mexican Genomics Sovereignty Act.

Authors:  Augusto Rojas-Martínez
Journal:  J Community Genet       Date:  2015-05-20

2.  Deep Multi-OMICs and Multi-Tissue Characterization in a Pre- and Postprandial State in Human Volunteers: The GEMM Family Study Research Design.

Authors:  Raul A Bastarrachea; Hugo A Laviada-Molina; Edna J Nava-Gonzalez; Irene Leal-Berumen; Claudia Escudero-Lourdes; Fabiola Escalante-Araiza; Vanessa-Giselle Peschard; Rosa A Veloz-Garza; Karin Haack; Angélica Martínez-Hernández; Francisco M Barajas-Olmos; Fernanda Molina-Segui; Fatima A Buenfil-Rello; Lucia Gonzalez-Ramirez; Reinhard Janssen-Aguilar; Ricardo Lopez-Muñoz; Fernanda Perez-Cetina; Janeth F Gaytan-Saucedo; Zoila Vaquera; Judith Cornejo-Barrera; Juan Carlos Castillo-Pineda; Areli Murillo-Ramirez; Sara P Diaz-Tena; Benigno Figueroa-Nuñez; Laura González-López; Rocío A Salinas-Osornio; Melesio E Valencia-Rendón; José Ángeles-Chimal; Jesús Santa-Olalla Tapia; José M Remes-Troche; Salvador B Valdovinos-Chavez; Eira E Huerta-Avila; Xianlin Han; Lorena Orozco; Ernesto Rodriguez-Ayala; Susan Weintraub; Esther C Gallegos-Cabrales; Shelley A Cole; Jack W Kent
Journal:  Genes (Basel)       Date:  2018-11-02       Impact factor: 4.096

3.  Towards precision medicine: defining and characterizing adipose tissue dysfunction to identify early immunometabolic risk in symptom-free adults from the GEMM family study.

Authors:  Ernesto Rodriguez-Ayala; Esther C Gallegos-Cabrales; Laura Gonzalez-Lopez; Hugo A Laviada-Molina; Rocio A Salinas-Osornio; Edna J Nava-Gonzalez; Irene Leal-Berumen; Claudia Escudero-Lourdes; Fabiola Escalante-Araiza; Fatima A Buenfil-Rello; Vanessa-Giselle Peschard; Antonio Laviada-Nagel; Eliud Silva; Rosa A Veloz-Garza; Angelica Martinez-Hernandez; Francisco M Barajas-Olmos; Fernanda Molina-Segui; Lucia Gonzalez-Ramirez; Rebeca Espadas-Olivera; Ricardo Lopez-Muñoz; Ruy D Arjona-Villicaña; Victor M Hernandez-Escalante; Martha E Rodriguez-Arellano; Janeth F Gaytan-Saucedo; Zoila Vaquera; Monica Acebo-Martinez; Judith Cornejo-Barrera; Jancy Andrea Huertas-Quintero; Juan Carlos Castillo-Pineda; Areli Murillo-Ramirez; Sara P Diaz-Tena; Benigno Figueroa-Nuñez; Melesio E Valencia-Rendon; Rafael Garzon-Zamora; Juan Manuel Viveros-Paredes; José Ángeles-Chimal; Jesús Santa-Olalla Tapia; José M Remes-Troche; Salvador B Valdovinos-Chavez; Eira E Huerta-Avila; Juan Carlos Lopez-Alvarenga; Anthony G Comuzzie; Karin Haack; Xianlin Han; Lorena Orozco; Susan Weintraub; Jack W Kent; Shelley A Cole; Raul A Bastarrachea
Journal:  Adipocyte       Date:  2020-12       Impact factor: 4.534

  3 in total

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