Literature DB >> 22897636

Involving youth with disabilities in the development and evaluation of a new advocacy training: Project TEAM.

Jessica Kramer1, Yishai Barth, Katie Curtis, Kit Livingston, Madeline O'Neil, Zach Smith, Samantha Vallier, Ashley Wolfe.   

Abstract

PURPOSE: This paper describes a participatory research process in which six youth with disabilities (Youth Panel) participated in the development and evaluation of a manualized advocacy training, Project TEAM (Teens making Environment and Activity Modifications). Project TEAM teaches youth with disabilities how to identify environmental barriers, generate solutions, and request accommodations.
METHOD: The Youth Panel conducted their evaluation after the university researcher implemented Project TEAM with three groups of trainees. The Youth Panel designed and administered a survey and focus group to evaluate enjoyment and usefulness of Project TEAM with support from an advocate/researcher. Members of the Youth Panel analyzed survey response frequencies. The advocate/researcher conducted a content analysis of the open-ended responses.
RESULTS: Sixteen of 21 Project TEAM trainees participated in the evaluation. The evaluation results suggest that the trainees found the interactive and individualized aspects of the Project TEAM most enjoyable and useful. Some instructional materials were difficult for trainees with cognitive disabilities to understand.
CONCLUSIONS: The Youth Panel's involvement in the development of Project TEAM may explain the relatively positive experiences reported by trainees. Project TEAM should continue to provide trainees with the opportunity to apply concepts in real-life situations. Project TEAM requires revisions to ensure it is enjoyable and useful for youth with a variety of disabilities. IMPLICATIONS FOR REHABILITATION: • Group process strategies, picture-based data collection materials, peer teamwork, and mentorship from adults with disabilities can enable youth with disabilities to engage in research. • Collaborating with youth with disabilities in the development of new rehabilitation approaches may enhance the relevance of interventions for other youth with disabilities. • Youth with cognitive disabilities participating in advocacy and environment-focused interventions may prefer interactive and experiential learning activities over passive teaching approaches such as powerpoints and videos.

Entities:  

Mesh:

Year:  2012        PMID: 22897636     DOI: 10.3109/09638288.2012.705218

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  5 in total

1.  Feasibility of electronic peer mentoring for transition-age youth and young adults with intellectual and developmental disabilities: Project Teens making Environment and Activity Modifications.

Authors:  Jessica M Kramer; Cathryn T Ryan; Rachel Moore; Ariel Schwartz
Journal:  J Appl Res Intellect Disabil       Date:  2017-03-01

2.  Identifying and Evaluating the Therapeutic Strategies Used During a Manualized Self- Advocacy Intervention for Transition-Age Youth.

Authors:  Jessica M Kramer
Journal:  OTJR (Thorofare N J)       Date:  2015-01

3.  Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program.

Authors:  Femke van Schelven; Eline van der Meulen; Noortje Kroeze; Marjolijn Ketelaar; Hennie Boeije
Journal:  Res Involv Engagem       Date:  2020-09-30

4.  Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities.

Authors:  Rackeb Tesfaye; Valerie Courchesne; Afiqah Yusuf; Tal Savion-Lemieux; Ilina Singh; Keiko Shikako-Thomas; Pat Mirenda; Charlotte Waddell; Isabel M Smith; David Nicholas; Peter Szatmari; Terry Bennett; Eric Duku; Stelios Georgiades; Connor Kerns; Tracy Vaillancourt; Anat Zaidman-Zait; Lonnie Zwaigenbaum; Mayada Elsabbagh
Journal:  Autism       Date:  2019-03-27

Review 5.  Patient and Public Involvement of young people with a chronic condition in projects in health and social care: A scoping review.

Authors:  Femke van Schelven; Hennie Boeije; Veerle Mariën; Jany Rademakers
Journal:  Health Expect       Date:  2020-05-05       Impact factor: 3.377

  5 in total

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