Literature DB >> 22882729

Family caregiver perspectives on social relations of elderly residents with dementia in small-scale versus traditional long-term care settings in the Netherlands and Belgium.

Alida H P M de Rooij1, Katrien G Luijkx, Nele Spruytte, Peggy M J Emmerink, Jos M G A Schols, Anja G Declercq.   

Abstract

AIMS AND
OBJECTIVES: To provide insight into family caregiver perspectives on social relations within the 'caregiving triangle' between family caregiver, professional caregiver and elderly resident with dementia. Results were compared between traditional versus small-scale long-term care settings in the Netherlands and Belgium.
BACKGROUND: Residential dementia care is shifting towards a more holistic and person-centred approach. Until now, little is known about family caregiver perspectives.
DESIGN: A quasi-experimental longitudinal design.
METHODS: This study was part of a larger research project focusing on the quality of life of residents with dementia in traditional and small-scale settings (n = 179). This study focused on family caregivers related to these residents (n = 64). They filled in a questionnaire containing 25 items (baseline and after 12 months) related to their perspectives on the interaction within the 'caregiving triangle'. Analyses were performed using mixed models and logistic regression.
RESULTS: Compared to traditional settings, family caregivers of relatives with dementia living in small-scale settings had more contact with the professional caregivers, were more satisfied with this contact and felt that staff paid more attention to their feelings as family members. They also reported that staff showed better listening skills towards the residents. Furthermore, compared to those in Belgium, family caregivers in the Netherlands perceived staff to be less hurried and more accepting of help from family and felt that staff more often takes the resident seriously.
CONCLUSION: In the move towards more person-centred care for residents with dementia, this study finds preliminary evidence for the importance of integrating the family perspective. RELEVANCE TO CLINICAL PRACTICE: Gaining more insight into the perspectives of family caregivers on the social relations within the 'caregiving triangle' may provide knowledge about the importance of the social system surrounding elderly residents with dementia and can provide pointers for future research.
© 2012 Blackwell Publishing Ltd.

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Year:  2012        PMID: 22882729     DOI: 10.1111/j.1365-2702.2012.04110.x

Source DB:  PubMed          Journal:  J Clin Nurs        ISSN: 0962-1067            Impact factor:   3.036


  5 in total

1.  Experiences of family caregivers in green care farms and other nursing home environments for people with dementia: a qualitative study.

Authors:  Bram de Boer; Hilde Verbeek; Sandra M G Zwakhalen; Jan P H Hamers
Journal:  BMC Geriatr       Date:  2019-05-28       Impact factor: 3.921

2.  How Can Autonomy Be Maintained and Informal Care Improved for People With Dementia Living in Residential Care Facilities: A Systematic Literature Review.

Authors:  Jogé Boumans; Leonieke C van Boekel; Caroline A Baan; Katrien G Luijkx
Journal:  Gerontologist       Date:  2019-11-16

3.  Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities.

Authors:  Damian J Harkin; Claire M C O'Connor; Mary-Rose Birch; Christopher J Poulos
Journal:  Health Soc Care Community       Date:  2019-12-20

Review 4.  Understanding Interactions Between Caregivers and Care Recipients in Person-Centered Dementia Care: A Rapid Review.

Authors:  Qiujuan Wu; Siyu Qian; Chao Deng; Ping Yu
Journal:  Clin Interv Aging       Date:  2020-09-14       Impact factor: 4.458

5.  Exploring how residential care facilities can enhance the autonomy of people with dementia and improve informal care.

Authors:  Jogé Boumans; Leonieke C van Boekel; Marjolein Ea Verbiest; Caroline A Baan; Katrien G Luijkx
Journal:  Dementia (London)       Date:  2021-07-02
  5 in total

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