Literature DB >> 22846045

Savior siblings, parenting and the moral valorization of children.

Kimberly Strong1, Ian Kerridge, Miles Little.   

Abstract

Philosophy has long been concerned with 'moral status'. Discussions about the moral status of children, however, seem often to promote confusion rather than clarity. Using the creation of 'savior siblings' as an example, this paper provides a philosophical critique of the moral status of children and the moral relevance of parenting and the role that formative experience, regret and relational autonomy play in parental decisions. We suggest that parents make moral decisions that are guided by the moral significance they attach to children, to sick children and most importantly, to a specific sick child (theirs). This moral valorization is rarely made explicit and has generally been ignored by both philosophers and clinicians in previous critiques. Recognizing this, however, may transform not only the focus of bioethical discourse but also the policies and practices surrounding the care of children requiring bone marrow or cord blood transplantation by better understanding the values at stake behind parental decision making.
© 2012 John Wiley & Sons Ltd.

Entities:  

Keywords:  decision making; empirical bioethics; formative experience; moral status; regret; relational autonomy

Mesh:

Year:  2012        PMID: 22846045     DOI: 10.1111/j.1467-8519.2012.02001.x

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  4 in total

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Journal:  HEC Forum       Date:  2014-09

2.  Creating human germ cells for unmet reproductive needs.

Authors:  Tetsuya Ishii; Renee A Reijo Pera
Journal:  Nat Biotechnol       Date:  2016-05-06       Impact factor: 54.908

3.  Factors Influencing the Decision-Making Process and Long-Term Interpersonal Outcomes for Parents Who Undergo Preimplantation Genetic Diagnosis for Fanconi Anemia: a Qualitative Investigation.

Authors:  K Haude; P McCarthy Veach; B LeRoy; H Zierhut
Journal:  J Genet Couns       Date:  2016-11-17       Impact factor: 2.537

4.  Deciding together? Best interests and shared decision-making in paediatric intensive care.

Authors:  Giles Birchley
Journal:  Health Care Anal       Date:  2014-09
  4 in total

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