BACKGROUND: No existing stand-alone measures of spiritual wellbeing have been developed in cross-cultural and multiple linguistic contexts. AIM: Cross-cultural development of a stand-alone European Organisation for Research and Treatment of Cancer (EORTC) measure of spiritual wellbeing for palliative care patients with cancer. DESIGN: Broadly following EORTC Quality of Life Group (QLG) guidelines for developing questionnaires, the study comprised three phases. Phase I identified relevant issues and obtained the views of palliative care patients and professionals about those issues. Phase II operationalised issues into items. Phase III pilot-tested those items with palliative care patients. Amendments to the guidelines included an intermediate Phase IIIa, and debriefing questions specific to the measure. SETTING/PARTICIPANTS: Phase III pilot-testing recruited 113 people with incurable cancer from hospitals and hospices in six European countries and Japan. RESULTS: A provisional 36-item measure ready for Phase IV field-testing, the EORTC QLQ-SWB36, has been developed. Careful attention to translation and simultaneous development in multiple languages means items are acceptable and consistent between different countries and languages. Phase III data from 113 patients in seven countries show that the items are comprehensible across languages and cultures. Phase III patient participants in several countries used the measure as a starting point for discussing the issues it addresses. CONCLUSION: The EORTC QLG's rigorous cross-cultural development process ensures that the EORTC QLQ-SWB36 identifies key issues for spiritual wellbeing in multiple cultural contexts, and that items are comprehensible and consistent across languages. Some cross-cultural differences were observed, but data were insufficient to enable generalisation. Phase IV field-testing will investigate these differences further.
BACKGROUND: No existing stand-alone measures of spiritual wellbeing have been developed in cross-cultural and multiple linguistic contexts. AIM: Cross-cultural development of a stand-alone European Organisation for Research and Treatment of Cancer (EORTC) measure of spiritual wellbeing for palliative care patients with cancer. DESIGN: Broadly following EORTC Quality of Life Group (QLG) guidelines for developing questionnaires, the study comprised three phases. Phase I identified relevant issues and obtained the views of palliative care patients and professionals about those issues. Phase II operationalised issues into items. Phase III pilot-tested those items with palliative care patients. Amendments to the guidelines included an intermediate Phase IIIa, and debriefing questions specific to the measure. SETTING/PARTICIPANTS: Phase III pilot-testing recruited 113 people with incurable cancer from hospitals and hospices in six European countries and Japan. RESULTS: A provisional 36-item measure ready for Phase IV field-testing, the EORTC QLQ-SWB36, has been developed. Careful attention to translation and simultaneous development in multiple languages means items are acceptable and consistent between different countries and languages. Phase III data from 113 patients in seven countries show that the items are comprehensible across languages and cultures. Phase III patientparticipants in several countries used the measure as a starting point for discussing the issues it addresses. CONCLUSION: The EORTC QLG's rigorous cross-cultural development process ensures that the EORTC QLQ-SWB36 identifies key issues for spiritual wellbeing in multiple cultural contexts, and that items are comprehensible and consistent across languages. Some cross-cultural differences were observed, but data were insufficient to enable generalisation. Phase IV field-testing will investigate these differences further.
Authors: Janneke van Roij; Heidi Fransen; Lonneke van de Poll-Franse; Myrte Zijlstra; Natasja Raijmakers Journal: Qual Life Res Date: 2018-02-10 Impact factor: 4.147
Authors: Juan Ignacio Arraras; Fernando Arias de la Vega; Gemma Asin; Mikel Rico; Uxue Zarandona; Clara Eito; Koldo Cambra; Marta Barrondo; Marta Errasti; Juan Verdún; Jose Rivadeneira; Miguel Angel Dominguez Journal: Qual Life Res Date: 2013-09-04 Impact factor: 4.147
Authors: Gudlaug Helga Asgeirsdottir; Einar Sigurbjörnsson; Rannveig Traustadottir; Valgerdur Sigurdardottir; Sigridur Gunnarsdottir; Ewan Kelly Journal: Support Care Cancer Date: 2013-01-04 Impact factor: 3.603
Authors: Marianne J Hjermstad; Mia Bergenmar; Kristin Bjordal; Sheila E Fisher; Dirk Hofmeister; Sébastien Montel; Ourania Nicolatou-Galitis; Monica Pinto; Judith Raber-Durlacher; Susanne Singer; Iwona M Tomaszewska; Krzysztof A Tomaszewski; Irma Verdonck-de Leeuw; Noam Yarom; Julie B Winstanley; Bente B Herlofson Journal: Support Care Cancer Date: 2016-04-25 Impact factor: 3.603
Authors: Ian Koper; H Roeline W Pasman; Bart P M Schweitzer; Annemieke Kuin; Bregje D Onwuteaka-Philipsen Journal: BMC Palliat Care Date: 2019-11-09 Impact factor: 3.234
Authors: Ivana Dabo; Iva Skočilić; Bella Vivat; Ingrid Belac-Lovasić; Iva Sorta-Bilajac Turina Journal: Int J Environ Res Public Health Date: 2021-11-13 Impact factor: 3.390
Authors: Renske Kruizinga; Michael Scherer-Rath; Johannes B A M Schilderman; Mariëtte Weterman; Teresa Young; Hanneke W M van Laarhoven Journal: BMC Palliat Care Date: 2017-12-08 Impact factor: 3.234