Literature DB >> 22833474

A narrative literature review of the contribution of volunteers in end-of-life care services.

Sara Morris1, Amanda Wilmot, Matthew Hill, Nick Ockenden, Sheila Payne.   

Abstract

BACKGROUND: Volunteers are integral to the history of hospices and continue to play a vital role. However, economic, policy and demographic challenges in the twenty-first century raise questions about how best to manage this essential resource. AIM: This narrative review explores the recent literature on end-of-life care volunteering and reflects upon the issues pertinent to current organisational challenges and opportunities.
DESIGN: The parameters of the review were set deliberately wide in order to capture some of the nuances of contemporary volunteer practices. Articles reporting on research or evaluation of adult end-of-life care services (excluding prison services) that use volunteers and were published in English between 2000 and 2011 were included. DATA SOURCES: Seven electronic databases, key journals and grey literature databases.
RESULTS: Sixty-eight articles were included in the analysis. The articles were drawn from an international literature, while acknowledging that volunteer roles vary considerably by organisation and/or by country and over time. The majority of articles were small in scale and diverse in methodology, but the same topics repeatedly emerged from both the qualitative and quantitative data. The themes identified were individual volunteer factors (motivation, characteristics of volunteers, stress and coping, role boundaries and value) and organisational factors (recruiting for diversity, support and training and volunteers' place in the system).
CONCLUSIONS: The tensions involved in negotiating the boundary spaces that volunteers inhabit, informality and regulation, diversity issues and the cultural specificity of community models, are suggested as topics that merit further research and could contribute to the continuing development of the volunteer workforce.

Entities:  

Mesh:

Year:  2012        PMID: 22833474     DOI: 10.1177/0269216312453608

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  13 in total

Review 1.  Training and supportive programs for palliative care volunteers in community settings.

Authors:  Dell Horey; Annette F Street; Margaret O'Connor; Louise Peters; Susan F Lee
Journal:  Cochrane Database Syst Rev       Date:  2015-07-20

2.  Continuing professional development for volunteers working in palliative care in a tertiary care cancer institute in India: a cross-sectional observational study of educational needs.

Authors:  Jayita Kedar Deodhar; Mary Ann Muckaden
Journal:  Indian J Palliat Care       Date:  2015 May-Aug

3.  Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience.

Authors:  Catherine Walshe; Guillermo Perez Algorta; Steven Dodd; Matthew Hill; Nick Ockenden; Sheila Payne; Nancy Preston
Journal:  BMC Palliat Care       Date:  2016-07-13       Impact factor: 3.234

Review 4.  Hospice volunteers: bridging the gap to the community?

Authors:  Sara M Morris; Sheila Payne; Nick Ockenden; Matthew Hill
Journal:  Health Soc Care Community       Date:  2015-03-25

5.  Palliative care volunteerism across the healthcare system: A survey study.

Authors:  Steven Vanderstichelen; Dirk Houttekier; Joachim Cohen; Yanna Van Wesemael; Luc Deliens; Kenneth Chambaere
Journal:  Palliat Med       Date:  2018-05-08       Impact factor: 4.762

6.  'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA).

Authors:  Steven Dodd; Matt Hill; Nick Ockenden; Guillermo Perez Algorta; Sheila Payne; Nancy Preston; Catherine Walshe
Journal:  Support Care Cancer       Date:  2018-03-29       Impact factor: 3.603

7.  Hospital Volunteering Experiences Suggest that New Policies are Needed to Promote their Integration in Daily Care: Findings from a Qualitative Study.

Authors:  Silvia Gonella; Federica Canzan; Enrico Larghero; Elisa Ambrosi; Alvisa Palese; Valerio Dimonte
Journal:  Zdr Varst       Date:  2019-10-01

8.  Volunteers in specialist palliative care: a survey of adult services in the United Kingdom.

Authors:  Rachel Burbeck; Joe Low; Elizabeth L Sampson; Ruth Bravery; Matthew Hill; Sara Morris; Nick Ockenden; Sheila Payne; Bridget Candy
Journal:  J Palliat Med       Date:  2014-01-29       Impact factor: 2.947

9.  How effective are volunteers at supporting people in their last year of life? A pragmatic randomised wait-list trial in palliative care (ELSA).

Authors:  Catherine Walshe; Steven Dodd; Matt Hill; Nick Ockenden; Sheila Payne; Nancy Preston; Guillermo Perez Algorta
Journal:  BMC Med       Date:  2016-12-09       Impact factor: 8.775

10.  To be a trained and supported volunteer in palliative care - a phenomenological study.

Authors:  Ulrika Söderhamn; Sylvi Flateland; Marthe Fensli; Ragnhild Skaar
Journal:  BMC Palliat Care       Date:  2017-03-14       Impact factor: 3.234

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