Literature DB >> 22814591

Involvement in research without compromising research quality.

Ruth Stewart1, Kristin Liabo.   

Abstract

Health research funders in the UK now ask applicants to state how their research will involve patients and members of the public. Such involvement can help with questions that researchers repeatedly face: about improving trial recruitment, response rates and follow-up. Patient and Public Involvement (PPI) in research is usually presented in the form of a ladder, from a low rung where studies are led by researchers with no patient involvement, to a high rung where studies are patient-led. This hierarchy does not sit well with many clinicians and academics whose expertise appears to have been downgraded. This article argues that research quality and relevance are optimised when patient expertise is integrated with researchers' and policy-makers' expertise, and each role acknowledged and valued, illustrated by an alternative model for PPI which places research and expertise at the centre of the involvement enterprise. The Royal Society of Medicine Press Ltd 2012

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Year:  2012        PMID: 22814591     DOI: 10.1258/jhsrp.2012.011086

Source DB:  PubMed          Journal:  J Health Serv Res Policy        ISSN: 1355-8196


  20 in total

1.  Patient engagement in pharmacy practice research.

Authors:  Damilola Adesanoye; Lisa Guirguis
Journal:  Can Pharm J (Ott)       Date:  2017-02-07

2.  An analysis of the Research Team-Service User relationship from the Service User perspective: a consideration of 'The Three Rs' (Roles, Relations, and Responsibilities) for healthcare research organisations.

Authors:  Melanie Jordan; Emma Rowley; Richard Morriss; Nick Manning
Journal:  Health Expect       Date:  2014-07-25       Impact factor: 3.377

3.  Challenges in co-designing an intervention to increase mobility in older patients: a qualitative study.

Authors:  Jeanette Kirk; Thomas Bandholm; Ove Andersen; Rasmus Skov Husted; Tine Tjørnhøj-Thomsen; Per Nilsen; Mette Merete Pedersen
Journal:  J Health Organ Manag       Date:  2021-04-09

4.  From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials.

Authors:  Deborah Buck; Carrol Gamble; Louise Dudley; Jennifer Preston; Bec Hanley; Paula R Williamson; Bridget Young
Journal:  BMJ Open       Date:  2014-12-04       Impact factor: 2.692

5.  Broadening public participation in systematic reviews: a case example involving young people in two configurative reviews.

Authors:  Kathryn Oliver; Rebecca Rees; Louca-Mai Brady; Josephine Kavanagh; Sandy Oliver; James Thomas
Journal:  Res Synth Methods       Date:  2015-06       Impact factor: 5.273

Review 6.  Transitions from biomedical to recovery-oriented practices in mental health: a scoping review to explore the role of Internet-based interventions.

Authors:  Monica Strand; Deede Gammon; Cornelia M Ruland
Journal:  BMC Health Serv Res       Date:  2017-04-07       Impact factor: 2.655

7.  Evidence-based policymaking is not like evidence-based medicine, so how far should you go to bridge the divide between evidence and policy?

Authors:  Paul Cairney; Kathryn Oliver
Journal:  Health Res Policy Syst       Date:  2017-04-26

8.  Patient involvement in a qualitative meta-synthesis: lessons learnt.

Authors:  Kerin Bayliss; Bella Starling; Karim Raza; Eva C Johansson; Codruta Zabalan; Susan Moore; Diana Skingle; Tiina Jasinski; Susan Thomas; Rebecca Stack
Journal:  Res Involv Engagem       Date:  2016-05-12

9.  Formalising the induction of patient and public involvement contributors on trial oversight committees.

Authors:  Emily C Pickering; Bec Hanley; Philip Bell; Jacqui Gath; Patrick Hanlon; Robert Oldroyd; Richard Stephens; Conor D Tweed
Journal:  Res Involv Engagem       Date:  2021-06-17

Review 10.  Patient engagement in Canada: a scoping review of the 'how' and 'what' of patient engagement in health research.

Authors:  Elizabeth Manafo; Lisa Petermann; Ping Mason-Lai; Virginia Vandall-Walker
Journal:  Health Res Policy Syst       Date:  2018-02-07
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