Literature DB >> 22789051

Personalized disclosure by information-on-demand: attending to patients' needs in the informed consent process.

Gil Siegal1, Richard J Bonnie, Paul S Appelbaum.   

Abstract

Obtaining informed consent has typically become a stylized ritual of presenting and signing a form, in which physicians are acting defensively and patients lack control over the content and flow of information. This leaves patients at risk both for being under-informed relative to their decisional needs and of receiving more information than they need or desire. By personalizing the process of seeking and receiving information and allowing patients to specify their desire for information in a prospective manner, we aim to shift genuine control over the informational process to patients. A new paradigm of Information on Demand, such as we suggest, would also enhance legal certainty, achieve greater congruence between the information patients want and the information they receive, and promote more meaningful patient-physician interactions, a desirable outcome that has been difficult to achieve by other means.
© 2012 American Society of Law, Medicine & Ethics, Inc.

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Year:  2012        PMID: 22789051     DOI: 10.1111/j.1748-720X.2012.00669.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  2 in total

Review 1.  How much information do patients want or need.

Authors:  Jean-Claude Givel; Benedikt Meier
Journal:  World J Surg       Date:  2014-07       Impact factor: 3.352

2.  Experiences with obtaining informed consent for genomic sequencing.

Authors:  Barbara A Bernhardt; Myra I Roche; Denise L Perry; Sarah R Scollon; Ashley N Tomlinson; Debra Skinner
Journal:  Am J Med Genet A       Date:  2015-07-21       Impact factor: 2.802

  2 in total

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