Literature DB >> 22775776

New insights into family functioning and quality of life after pediatric liver transplantation.

Bianca Denny1, Kathe Beyerle, Mandy Kienhuis, Ancuta Cora, Susana Gavidia-Payne, Winita Hardikar.   

Abstract

Thorough research of the medical aspects of pediatric liver transplantation has given way to recent interest in the impact of the transplantation process on the QOL of recipients and their families. In this cross-sectional study, we compared the family functioning and QOL of children (n = 30) aged between three and 16 yr (M = 10.10, s.d. = 3.62) who had received a liver transplant in the previous 1-12 yr (M = 5.31, s.d. = 3.44) with non-transplant children (n = 33), as reported via parent proxy. Results showed that parents of pediatric liver transplant recipients made significantly more adjustments to family routines to accommodate their children, particularly in relation to childcare. Impaired family functioning was also found to be associated with decreased QOL. These preliminary findings of relative deficits in family functioning may inform psychosocial interventions to assist pediatric liver transplant patients and their families. Further investigation beyond a single-center study incorporating subjective information from pediatric patients and their parents is recommended.
© 2012 John Wiley & Sons A/S.

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Year:  2012        PMID: 22775776     DOI: 10.1111/j.1399-3046.2012.01738.x

Source DB:  PubMed          Journal:  Pediatr Transplant        ISSN: 1397-3142


  3 in total

1.  Family roles and routines after pediatric liver transplantation: implications for quality of life and beyond.

Authors:  Emily M Fredericks
Journal:  Pediatr Transplant       Date:  2012-08-20

2.  A pilot study of the association between sleep disturbance in children with liver transplants and parent and family health-related quality of life.

Authors:  Melissa N Andersen; Dawn Dore-Stites; Rebecca Gleit; M James Lopez; Emily M Fredericks
Journal:  J Pediatr Psychol       Date:  2014-06-18

Review 3.  Risk Factors for Neurocognitive Functioning in Children with Autosomal Recessive Polycystic Kidney Disease.

Authors:  Stephen R Hooper
Journal:  Front Pediatr       Date:  2017-05-15       Impact factor: 3.418

  3 in total

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