Literature DB >> 22767914

Research ethics. Paying patients for their tissue: the legacy of Henrietta Lacks.

Robert D Truog1, Aaron S Kesselheim, Steven Joffe.   

Abstract

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Year:  2012        PMID: 22767914      PMCID: PMC4256075          DOI: 10.1126/science.1216888

Source DB:  PubMed          Journal:  Science        ISSN: 0036-8075            Impact factor:   47.728


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  7 in total

1.  What's the price of a research subject? Approaches to payment for research participation.

Authors:  N Dickert; C Grady
Journal:  N Engl J Med       Date:  1999-07-15       Impact factor: 91.245

2.  Taking the least of you: most of us have tissue or blood samples on file somewhere, whether we know it or not. What we don't typically know is what research they are being used for or how much money is being made from them. And science may want to keep things that way.

Authors:  Rebecca Skloot
Journal:  N Y Times Mag       Date:  2006-04-16

3.  Body of research--ownership and use of human tissue.

Authors:  R Alta Charo
Journal:  N Engl J Med       Date:  2006-10-12       Impact factor: 91.245

4.  Research sharing, ethics and public benefit.

Authors:  Patrick L Taylor
Journal:  Nat Biotechnol       Date:  2007-04       Impact factor: 54.908

5.  Genomics. Genomics, biobanks, and the trade-secret model.

Authors:  Robert Mitchell; John M Conley; Arlene M Davis; R Jean Cadigan; Allison W Dobson; Ryan Q Gladden
Journal:  Science       Date:  2011-04-15       Impact factor: 47.728

Review 6.  Can patents deter innovation? The anticommons in biomedical research.

Authors:  M A Heller; R S Eisenberg
Journal:  Science       Date:  1998-05-01       Impact factor: 47.728

7.  Research ethics. Research practice and participant preferences: the growing gulf.

Authors:  S B Trinidad; S M Fullerton; E J Ludman; G P Jarvik; E B Larson; W Burke
Journal:  Science       Date:  2011-01-21       Impact factor: 47.728

  7 in total
  9 in total

Review 1.  The role of brain tumor advocacy groups.

Authors:  Michele Rhee; Paulius Mui; Carl Cadogan; Jonny Imerman; Sarah Lindsell; Lainey Titus Samant
Journal:  Curr Neurol Neurosci Rep       Date:  2014-04       Impact factor: 5.081

2.  Ethical principles for the use of human cellular biotechnologies.

Authors:  Paul Root Wolpe; Karen S Rommelfanger
Journal:  Nat Biotechnol       Date:  2017-11-09       Impact factor: 54.908

Review 3.  Post-GWAS in Psychiatric Genetics: A Developmental Perspective on the "Other" Next Steps.

Authors:  Danielle M Dick; Peter B Barr; Seung Bin Cho; Megan E Cooke; Sally I-Chun Kuo; Tenesha J Lewis; Zoe Neale; Jessica E Salvatore; Jeanne Savage; Jinni Su
Journal:  Genes Brain Behav       Date:  2018-02-05       Impact factor: 3.449

Review 4.  The collaborative autonomy model of medical decision-making.

Authors:  Michael A Rubin
Journal:  Neurocrit Care       Date:  2014-04       Impact factor: 3.210

5.  Patient perspectives on compensation for biospecimen donation.

Authors:  Samuel C Allen; Minisha Lohani; Kristopher A Hendershot; Travis R Deal; Taylor White; Margie D Dixon; Rebecca D Pentz
Journal:  AJOB Empir Bioeth       Date:  2018-04-26

Review 6.  Characterizing the Biomedical Data-Sharing Landscape.

Authors:  Angela G Villanueva; Robert Cook-Deegan; Barbara A Koenig; Patricia A Deverka; Erika Versalovic; Amy L McGuire; Mary A Majumder
Journal:  J Law Med Ethics       Date:  2019-03       Impact factor: 1.718

7.  Paying Tribute to Henrietta Lacks at Tuskegee University and at The Virginia Henrietta Lacks Commission, Richmond, Virginia.

Authors:  Stephen Olufemi Sodeke; Lauren R Powell
Journal:  J Health Care Poor Underserved       Date:  2019

Review 8.  Guidelines for Biobanking of Bone Marrow Adipose Tissue and Related Cell Types: Report of the Biobanking Working Group of the International Bone Marrow Adiposity Society.

Authors:  Stephanie Lucas; Michaela Tencerova; Benoit von der Weid; Thomas Levin Andersen; Camille Attané; Friederike Behler-Janbeck; William P Cawthorn; Kaisa K Ivaska; Olaia Naveiras; Izabela Podgorski; Michaela R Reagan; Bram C J van der Eerden
Journal:  Front Endocrinol (Lausanne)       Date:  2021-09-27       Impact factor: 5.555

Review 9.  Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.

Authors:  Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2016-03-03       Impact factor: 8.929

  9 in total

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