Literature DB >> 22734661

Transition in endocrinology: the challenge of maintaining continuity.

Jennifer Downing1, Helena K Gleeson, Peter E Clayton, Julian R E Davis, Jerry K Wales, Peter Callery.   

Abstract

OBJECTIVE: Transition from child to adult status is a crucial stage in young people's lives. It is important that young people continue to receive appropriate endocrine care throughout and following transfer from paediatric to adult services. This study examined indicators of patient loss to follow-up at initial transfer from paediatric care to identify implications for transitional care practice and research.
METHODS: A retrospective analysis of patient data following transfer from paediatric services to a young person's transition clinic was conducted. Attendance data from 103 patients transferred to the Young Person's Clinic were analysed to determine the factors affecting nonattendance 1-year post-transfer.
RESULTS: We found that overall one quarter of patients did not attend the young person's clinic in the first year after transfer. Those with poor attendance prior to transfer were likely to be poor attenders post-transfer. Further, those without an appointment scheduled in the first 6 months of their final paediatric transfer appointment were less likely to attend in the first year.
CONCLUSIONS: Young people are at risk of losing contact during the transfer from paediatric to the young person's clinic. Measures that promote continuity of contact could reduce the risk of long-term disengagement with care. Further development and research is required to identify the best ways to help young people with endocrine conditions in the transition from child to adult status.
© 2012 Blackwell Publishing Ltd.

Entities:  

Mesh:

Year:  2013        PMID: 22734661     DOI: 10.1111/j.1365-2265.2012.04473.x

Source DB:  PubMed          Journal:  Clin Endocrinol (Oxf)        ISSN: 0300-0664            Impact factor:   3.478


  11 in total

1.  An audit of the management of childhood-onset growth hormone deficiency during young adulthood in Scotland.

Authors:  M Ahmid; V Fisher; A J Graveling; S McGeoch; E McNeil; J Roach; J S Bevan; L Bath; M Donaldson; G Leese; A Mason; C G Perry; N N Zammitt; S F Ahmed; M G Shaikh
Journal:  Int J Pediatr Endocrinol       Date:  2016-03-16

Review 2.  Care of girls and women with Turner syndrome: beyond growth and hormones.

Authors:  Caroline Culen; Diana-Alexandra Ertl; Katharina Schubert; Lisa Bartha-Doering; Gabriele Haeusler
Journal:  Endocr Connect       Date:  2017-03-23       Impact factor: 3.335

3.  Developing a Patient-Centered mHealth App: A Tool for Adolescents With Type 1 Diabetes and Their Parents.

Authors:  Bree E Holtz; Katharine M Murray; Denise D Hershey; Julie K Dunneback; Shelia R Cotten; Amanda J Holmstrom; Arpita Vyas; Molly K Kaiser; Michael A Wood
Journal:  JMIR Mhealth Uhealth       Date:  2017-04-19       Impact factor: 4.773

4.  Communication with young people in paediatric and adult endocrine consultations: an intervention development and feasibility study.

Authors:  J Downing; H Gleeson; P E Clayton; J R E Davis; P Dimitri; J Wales; B Young; P Callery
Journal:  BMC Endocr Disord       Date:  2017-06-15       Impact factor: 2.763

5.  Diagnosis and Treatment of Growth Hormone Deficiency: A Position Statement from Korean Endocrine Society and Korean Society of Pediatric Endocrinology.

Authors:  Jung Hee Kim; Hyun Wook Chae; Sang Ouk Chin; Cheol Ryong Ku; Kyeong Hye Park; Dong Jun Lim; Kwang Joon Kim; Jung Soo Lim; Gyuri Kim; Yun Mi Choi; Seong Hee Ahn; Min Ji Jeon; Yul Hwangbo; Ju Hee Lee; Bu Kyung Kim; Yong Jun Choi; Kyung Ae Lee; Seong-Su Moon; Hwa Young Ahn; Hoon Sung Choi; Sang Mo Hong; Dong Yeob Shin; Ji A Seo; Se Hwa Kim; Seungjoon Oh; Sung Hoon Yu; Byung Joon Kim; Choong Ho Shin; Sung-Woon Kim; Chong Hwa Kim; Eun Jig Lee
Journal:  Endocrinol Metab (Seoul)       Date:  2020-06-24

Review 6.  Childhood-onset growth hormone deficiency and the transition to adulthood: current perspective.

Authors:  M Ahmid; S F Ahmed; M G Shaikh
Journal:  Ther Clin Risk Manag       Date:  2018-11-23       Impact factor: 2.423

7.  Less ready for adulthood?-Turner syndrome has an impact on transition readiness.

Authors:  Caroline Culen; Marion Herle; Diana-Alexandra Ertl; Elke Fröhlich-Reiterer; Peter Blümel; Gudrun Wagner; Gabriele Häusler
Journal:  Clin Endocrinol (Oxf)       Date:  2020-08-14       Impact factor: 3.478

8.  We mind your step: understanding and preventing drop-out in the transfer from paediatric to adult tertiary endocrine healthcare.

Authors:  Kirsten Davidse; Anneloes van Staa; Wanda Geilvoet; Judith P van Eck; Karlijn Pellikaan; Janneke Baan; Anita C S Hokken-Koelega; Erica L T van den Akker; Theo Sas; Sabine E Hannema; Aart Jan van der Lely; Laura C G de Graaff
Journal:  Endocr Connect       Date:  2022-05-25       Impact factor: 3.221

9.  Evaluating outpatient transition clinics: a mixed-methods study protocol.

Authors:  Jane N T Sattoe; Mariëlle A C Peeters; Sander R Hilberink; Erwin Ista; AnneLoes van Staa
Journal:  BMJ Open       Date:  2016-08-26       Impact factor: 2.692

10.  A Synopsis of Current Practice in the Diagnosis and Management of Patients with Turner Syndrome in Turkey: A Survey of 18 Pediatric Endocrinology Centers

Authors:  Ahmet Uçar; Ayhan Abacı; Özgür Pirgon; Bumin Dündar; Filiz Tütüncüler; Gönül Çatlı; Ahmet Anık; Aylin Kılınç Uğurlu; Atilla Büyükgebiz
Journal:  J Clin Res Pediatr Endocrinol       Date:  2018-04-27
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