Literature DB >> 22733679

Providing confusion: the need for education not information in chronic care.

Kevin Butterworth1, Omnia Allam, Alex Gray, Heather Butterworth.   

Abstract

Patient information is one aspect of meeting the needs of health service users; it is meant to empower patients and their carers in making informed decisions and managing their health needs. Mary Dixon-Woods described two types of discourse in patient education: the first is more concerned with making patients comply with their doctors orders and the second is about empowering patients and rejecting direction. This article looks at the aims of the two and shows that neither is capable of supporting highly successful best practice within medicine. Instead, a hybrid set of strategic aims are proposed for patient education created by merging the two discourses in the same way that John Dewey merged the child-centred and child-led schools of thought in education. These hybrid strategic aims for patient education are then used to develop requirements for an information system to support patient education, using a mixture of system centric and user centric approaches.

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Year:  2012        PMID: 22733679     DOI: 10.1177/1460458212445500

Source DB:  PubMed          Journal:  Health Informatics J        ISSN: 1460-4582            Impact factor:   2.681


  3 in total

1.  Optimizing future planning in Parkinson disease: suggestions for a comprehensive roadmap from patients and care partners.

Authors:  Sarah R Jordan; Benzi Kluger; Roman Ayele; Adreanne Brungardt; Anne Hall; Jacqueline Jones; Maya Katz; Janis M Miyasaki; Hillary D Lum
Journal:  Ann Palliat Med       Date:  2020-02-06

2.  Co-Designing an eHealth Service for the Co-Care of Parkinson Disease: Explorative Study of Values and Challenges.

Authors:  Åsa Revenäs; Helena Hvitfeldt Forsberg; Emma Granström; Carolina Wannheden
Journal:  JMIR Res Protoc       Date:  2018-10-30

3.  Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson's disease in Sweden.

Authors:  Sara Riggare; Pär J Höglund; Helena Hvitfeldt Forsberg; Elena Eftimovska; Per Svenningsson; Maria Hägglund
Journal:  Health Informatics J       Date:  2017-04-23       Impact factor: 2.681

  3 in total

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