Literature DB >> 22720320

Recruitment and retention of ethnic minority elders into clinical research.

Yaron G Rabinowitz1, Dolores Gallagher-Thompson.   

Abstract

Despite an increasing awareness of the problem, clinical research continues to include lesser numbers of ethnic minority participants disproportionate to their population percentages. To rectify this problem, this article attempts to identify key barriers to minority recruitment and retention as well as specific strategies and methods successful in the past. We propose specific recommendations to address these barriers, and formulate a 3-prong approach to increasing minority recruitment and retention, with emphasis on elderly participants. The article discusses such concerns as building trust in the target community, using appropriate methods of outreach, and providing culturally sensitive written materials at appropriate health literacy levels. Through an awareness of and attention to cultural differences and sensitivities, researchers can and must address the chronic underrepresentation of ethnic minorities in clinical research.

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Year:  2010        PMID: 22720320

Source DB:  PubMed          Journal:  Alzheimer Dis Assoc Disord        ISSN: 0893-0341            Impact factor:   2.703


  17 in total

1.  Recruiting Community-Based Dementia Patients and Caregivers in a Nonpharmacologic Randomized Trial: What Works and How Much Does It Cost?

Authors:  Karen Morrison; Laraine Winter; Laura N Gitlin
Journal:  J Appl Gerontol       Date:  2014-05-04

2.  Challenges and strategies in recruiting, interviewing, and retaining recent Latino immigrants in substance abuse and HIV epidemiologic studies.

Authors:  Mario De La Rosa; Rosa Babino; Adelaida Rosario; Natalia Valiente Martinez; Lubna Aijaz
Journal:  Am J Addict       Date:  2011-12-15

3.  Increased ease of access to genetic counseling for low-income women with breast cancer using a point of care screening tool.

Authors:  Smita K Rao; Kimberly A Thomas; Rajbir Singh; Eden Biltibo; Philip E Lammers; Georgia L Wiesner
Journal:  J Community Genet       Date:  2021-01-03

4.  Clinical research participation among aging adults enrolled in an Alzheimer's Disease Center research registry.

Authors:  Angela L Jefferson; Susan Lambe; Christine Chaisson; Joseph Palmisano; Kathy J Horvath; Jason Karlawish
Journal:  J Alzheimers Dis       Date:  2011       Impact factor: 4.472

5.  Dementia Awareness Campaign in the Latino Community: A Novel Community Engagement Pilot Training Program with Promotoras.

Authors:  Nusha Askari; Ann Choryan Bilbrey; Iliana Garcia Ruiz; Marika Blair Humber; Dolores Gallagher-Thompson
Journal:  Clin Gerontol       Date:  2017-12-14       Impact factor: 2.619

6.  Strategies for enrollment of African Americans into cancer genetic studies.

Authors:  Altovise Ewing; Nicole Thompson; Luisel Ricks-Santi
Journal:  J Cancer Educ       Date:  2015-03       Impact factor: 2.037

7.  The Institute on Methods and Protocols for Advancement of Clinical Trials in ADRD (IMPACT-AD): A Novel Clinical Trials Training Program.

Authors:  T Berkness; M C Carrillo; R Sperling; R Petersen; P Aisen; C Flournoy; H Snyder; R Raman; J D Grill
Journal:  J Prev Alzheimers Dis       Date:  2021

8.  Research Attitudes and Interest Among Elderly Latinxs: The Impact of a Collaborative Video and Community Peers.

Authors:  Margaret C Sewell; Judith Neugroschl; Mari Umpierre; Shehan Chin; Carolyn W Zhu; Nelly Velasco; Sabrina Gonzalez; Alexandra Acabá-Berrocal; Luca Bianchetti; Gabriela Silva; Alma Collazo; Mary Sano
Journal:  J Alzheimers Dis       Date:  2021       Impact factor: 4.472

9.  Tailoring Research Recruitment for Acute Care Settings: Recommendations from People with Dementia and their Caregivers.

Authors:  Amanda M Friz; Clark Benson; Shannon Mullen; Laura Block; Andrea Gilmore-Bykovskyi
Journal:  Alzheimer Dis Assoc Disord       Date:  2021 Jul-Sep 01       Impact factor: 2.703

10.  Engaging Diverse Older Adults With Cognitive Impairment and Caregivers in Advance Care Planning: A Pilot Study of the Interactive PREPARE Website.

Authors:  Ashwin A Kotwal; Deborah E Barnes; Aiesha M Volow; Brookelle H Li; W John Boscardin; Rebecca L Sudore
Journal:  Alzheimer Dis Assoc Disord       Date:  2021 Oct-Dec 01       Impact factor: 2.703

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