Literature DB >> 22695283

Significance of patient registries for dermatological disorders.

Mark P de Souza1, Vanessa Rangel Miller.   

Abstract

Patient registries for dermatological disorders are important sources of data for researchers, clinicians, and patients. The majority of registries are maintained by academic investigators with funding from federal agencies. However, these registries are fragmented and are maintained only as long as federal funding exists. Patient organizations and companies can serve as alternative sources of funding for registries.

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Year:  2012        PMID: 22695283     DOI: 10.1038/jid.2012.168

Source DB:  PubMed          Journal:  J Invest Dermatol        ISSN: 0022-202X            Impact factor:   8.551


  4 in total

1.  Integrated image data and medical record management for rare disease registries. A general framework and its instantiation to theGerman Calciphylaxis Registry.

Authors:  Thomas M Deserno; Daniel Haak; Vincent Brandenburg; Verena Deserno; Christoph Classen; Paula Specht
Journal:  J Digit Imaging       Date:  2014-12       Impact factor: 4.056

2.  The Development of a Minimum Data Set for an Infertility Registry.

Authors:  Masoumeh Abbasi; Leila Ahmadian; Malihe Amirian; Hamed Tabesh; Saeid Eslami
Journal:  Perspect Health Inf Manag       Date:  2018-01-01

3.  Learning from disease registries during a pandemic: Moving toward an international federation of patient registries.

Authors:  Dmitri Wall; Raed Alhusayen; Bernd Arents; Christian Apfelbacher; Esther A Balogh; Laita Bokhari; Manja Bloem; Angela L Bosma; Tim Burton; Leslie Castelo-Soccio; Nicole Fagan; Steven R Feldman; Godfrey Fletcher; Carsten Flohr; Esther Freeman; Lars E French; Christopher E M Griffiths; George J Hruza; John R Ingram; Michael D Kappelman; Irene Lara-Corrales; Henry W Lim; Nekma Meah; Devon E McMahon; Satveer K Mahil; Ian McNicoll; Annelie Musters; Haley B Naik; Rodney Sinclair; Catherine H Smith; Phyllis Spuls; Desmond J Tobin; Katherine York; Alan D Irvine
Journal:  Clin Dermatol       Date:  2021-04-06       Impact factor: 3.541

4.  Developing a National Minimum Data Set for Kawasaki Disease Registry in Iran.

Authors:  Zainab Qazizadeh; Leila Shahbaznejad; Mohammad Reza Navaeifar; Mohammad Sadegh Rezai
Journal:  Front Pediatr       Date:  2022-02-28       Impact factor: 3.418

  4 in total

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