Literature DB >> 22673093

Stress variances among informal hospice caregivers.

Elaine Wittenberg-Lyles1, George Demiris, Debra Parker Oliver, Karla Washington, Stephanie Burt, Sara Shaunfield.   

Abstract

Care interventions are not routinely provided for hospice caregivers, despite widespread documentation of the burden and toll of the caregiving experience. Assessing caregivers for team interventions (ACT) proposes that holistic patient and family care includes ongoing caregiver needs assessment of primary, secondary, and intrapsychic stressors. In this study, our goal was to describe the variance in stressors for caregivers to establish evidence for the ACT theoretical framework. We used secondary interview data from a randomized controlled trial to analyze hospice caregiver discussions about concerns. We found variances in stress types, suggesting that caregiver interventions should range from knowledge and skill building to cognitive-behavioral interventions that aid in coping. Family members who assume the role of primary caregiver for a dying loved one need to be routinely assessed by hospice providers for customized interventions.

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Year:  2012        PMID: 22673093      PMCID: PMC3559181          DOI: 10.1177/1049732312448543

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  40 in total

1.  Caregiving and the stress process: an overview of concepts and their measures.

Authors:  L I Pearlin; J T Mullan; S J Semple; M M Skaff
Journal:  Gerontologist       Date:  1990-10

2.  Adult daughters and aging mothers: the role of guilt in the experience of caregiver burden.

Authors:  Judith G Gonyea; Ruth Paris; Lisa de Saxe Zerden
Journal:  Aging Ment Health       Date:  2008-09       Impact factor: 3.658

3.  Bridging troubled waters: family caregivers, transitions, and long-term care.

Authors:  Carol Levine; Deborah Halper; Ariella Peist; David A Gould
Journal:  Health Aff (Millwood)       Date:  2010 Jan-Feb       Impact factor: 6.301

4.  Support needs of informal hospice caregivers: a qualitative study.

Authors:  Jean Kutner; Kristin M Kilbourn; Allison Costenaro; Courtney A Lee; Carolyn Nowels; Jenny L Vancura; Derek Anderson; Tarah Ellis Keech
Journal:  J Palliat Med       Date:  2009-12       Impact factor: 2.947

5.  Caregiver participation in hospice interdisciplinary team meetings via videophone technology: A pilot study to improve pain management.

Authors:  Debra Parker Oliver; George Demiris; Elaine Wittenberg-Lyles; Davina Porock; Jacqueline Collier; Antony Arthur
Journal:  Am J Hosp Palliat Care       Date:  2010-03-18       Impact factor: 2.500

Review 6.  Educational needs of home caregivers of terminally ill patients: literature review.

Authors:  P Thielemann
Journal:  Am J Hosp Palliat Care       Date:  2000 Jul-Aug       Impact factor: 2.500

7.  Exploring factors that influence informal caregiving in medication management for home hospice patients.

Authors:  Denys T Lau; Rebecca Berman; Leslie Halpern; A Simon Pickard; Robert Schrauf; Whitney Witt
Journal:  J Palliat Med       Date:  2010-09       Impact factor: 2.947

8.  Differential patient-caregiver opinions of treatment and care for advanced lung cancer patients.

Authors:  Amy Y Zhang; Stephen J Zyzanski; Laura A Siminoff
Journal:  Soc Sci Med       Date:  2010-02-04       Impact factor: 4.634

Review 9.  A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer.

Authors:  Penny E Bee; Pamela Barnes; Karen A Luker
Journal:  J Clin Nurs       Date:  2009-04-08       Impact factor: 3.036

10.  Predictors of family conflict at the end of life: the experience of spouses and adult children of persons with lung cancer.

Authors:  Betty J Kramer; Melinda Kavanaugh; Amy Trentham-Dietz; Matthew Walsh; James A Yonker
Journal:  Gerontologist       Date:  2009-08-11
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  16 in total

1.  Qualitative evaluation of a problem-solving intervention for informal hospice caregivers.

Authors:  Karla T Washington; George Demiris; Debra Parker Oliver; Elaine Wittenberg-Lyles; Edith Crumb
Journal:  Palliat Med       Date:  2011-11-10       Impact factor: 4.762

2.  Gender Differences in Caregiving at End of Life: Implications for Hospice Teams.

Authors:  Karla T Washington; Kenneth C Pike; George Demiris; Debra Parker Oliver; David L Albright; Alexandria M Lewis
Journal:  J Palliat Med       Date:  2015-10-20       Impact factor: 2.947

3.  Surrogate Decision Maker Stress in Advance Care Planning Conversations: A Mixed-Methods Analysis From a Randomized Controlled Trial.

Authors:  Daniella Lipnick; Michael Green; Elizabeth Thiede; Theresa J Smith; Erik B Lehman; Rhonda Johnson; In Seo La; Debra Wiegand; Benjamin H Levi; Lauren J Van Scoy
Journal:  J Pain Symptom Manage       Date:  2020-07-06       Impact factor: 3.612

Review 4.  Informal caregiving of hospice patients.

Authors:  Colin G Pottie; Karen A Burch; Lori P Montross Thomas; Scott A Irwin
Journal:  J Palliat Med       Date:  2014-07       Impact factor: 2.947

5.  Support Network Factors Associated With Naming a Health Care Decision-Maker and Talking About Advance Care Planning Among People Living With HIV.

Authors:  Dulce M Cruz-Oliver; Tuo-Yen Tseng; Mary M Mitchell; Zachary Catanzarite; Chakra Budhathoki; Thomas J Smith; Cynda H Rushton; Amy R Knowlton
Journal:  J Pain Symptom Manage       Date:  2019-08-22       Impact factor: 3.612

6.  Factors influencing engagement in an online support group for family caregivers of individuals with advanced cancer.

Authors:  Karla T Washington; Debra Parker Oliver; Jacquelyn J Benson; Abigail J Rolbiecki; Lucas A Jorgensen; Dulce M Cruz-Oliver; George Demiris
Journal:  J Psychosoc Oncol       Date:  2019-11-06

7.  The Social Convoy for Family Caregivers Over the Course of Hospice.

Authors:  David L Albright; Karla Washington; Debra Parker-Oliver; Alexandria Lewis; Robin L Kruse; George Demiris
Journal:  J Pain Symptom Manage       Date:  2015-11-03       Impact factor: 3.612

8.  Behind the doors of home hospice patients: A secondary qualitative analysis of hospice nurse communication with patients and families.

Authors:  Debra Parker Oliver; Jessica Tappana; Karla T Washington; Abigail Rolbiecki; Kevin Craig; George Demiris; Collyn Schafer; Mumeenat Winjobi; Margaret F Clayton; Maija Reblin; Lee Ellington
Journal:  Palliat Support Care       Date:  2019-10

9.  Anxiety among informal hospice caregivers: an exploratory study.

Authors:  Karla T Washington; George Demiris; Kenneth C Pike; Robin L Kruse; Debra Parker Oliver
Journal:  Palliat Support Care       Date:  2014-02-13

10.  Home Hospice Caregivers' Perceived Information Needs.

Authors:  Ariel Shalev; Veerawat Phongtankuel; M Carrington Reid; Sara J Czaja; Ritchell Dignam; Rosemary Baughn; Matthew Newmark; Holly G Prigerson; Jeanne Teresi; Ronald D Adelman
Journal:  Am J Hosp Palliat Care       Date:  2018-10-09       Impact factor: 2.500

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