Literature DB >> 22673090

Patient and public involvement in the coproduction of knowledge: reflection on the analysis of qualitative data in a mental health study.

Steve Gillard1, Lucy Simons, Kati Turner, Mike Lucock, Christine Edwards.   

Abstract

Patient and public involvement in health research is increasingly well established internationally, but the impacts of involvement on the research process are hard to evaluate. We describe a process of qualitative data analysis in a mental health research project with a high level of mental health service user and carer involvement, and reflect critically on how we produced our findings. Team members not from research backgrounds sometimes challenged academic conventions, leading to complex findings that would otherwise have been missing. An essential component of how we coproduced knowledge involved retaining methodological flexibility so that nonconventional research voices in the team could situate and critique what was conventionally known. Deliberate and transparent reflection on how "who we are" informed the knowledge we produced was integral to our inquiry. We conclude that reflecting on knowledge (co)production is a useful tool for evaluating the impact of patient and public involvement on health research.

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Year:  2012        PMID: 22673090     DOI: 10.1177/1049732312448541

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  52 in total

1.  Peer worker roles and risk in mental health services: a qualitative comparative case study.

Authors:  Jessica Holley; Steve Gillard; Sarah Gibson
Journal:  Community Ment Health J       Date:  2015-02-18

2.  Patients as Agents in Behavioral Health Research and Service Provision: Recommendations to Support the Learning Health System.

Authors:  Hannah K Galvin; Carolyn Petersen; Vignesh Subbian; Anthony Solomonides
Journal:  Appl Clin Inform       Date:  2019-11-06       Impact factor: 2.342

3.  The impact of working as a peer worker in mental health services: a longitudinal mixed methods study.

Authors:  Steve Gillard; Rhiannon Foster; Sarah White; Sally Barlow; Rahul Bhattacharya; Paul Binfield; Rachel Eborall; Alison Faulkner; Sarah Gibson; Lucy P Goldsmith; Alan Simpson; Mike Lucock; Jacqui Marks; Rosaleen Morshead; Shalini Patel; Stefan Priebe; Julie Repper; Miles Rinaldi; Michael Ussher; Jessica Worner
Journal:  BMC Psychiatry       Date:  2022-06-01       Impact factor: 4.144

4.  'Getting involved in research': a co-created, co-delivered and co-analysed course for those with lived experience of health and social care services.

Authors:  Carolyn Blair; Paul Best; Patricia Burns; Anne Campbell; Gavin Davidson; Joe Duffy; Anne Johnston; Berni Kelly; Campbell Killick; Denise Mac Dermott; Alan Maddock; Claire Jane McCartan; Paula McFadden; Anne McGlade; Lorna Montgomery; Sonia Patton; Dirk Schubotz; Brian Taylor; Fiona Templeton; Paul Webb; Chris White; Jade Yap
Journal:  Res Involv Engagem       Date:  2022-05-16

5.  Trust, deals and authority: community mental health professionals' experiences of influencing reluctant patients.

Authors:  Jorun Rugkåsa; Krysia Canvin; Julia Sinclair; Anna Sulman; Tom Burns
Journal:  Community Ment Health J       Date:  2014-03-25

6.  Developing a change model for peer worker interventions in mental health services: a qualitative research study.

Authors:  S Gillard; S L Gibson; J Holley; M Lucock
Journal:  Epidemiol Psychiatr Sci       Date:  2014-07-03       Impact factor: 6.892

7.  Measuring the impact of participatory research in psychiatry: How the search for epistemic justifications obscures ethical considerations.

Authors:  Phoebe Friesen; Sapfo Lignou; Mark Sheehan; Ilina Singh
Journal:  Health Expect       Date:  2019-12-18       Impact factor: 3.318

8.  Introducing peer worker roles into UK mental health service teams: a qualitative analysis of the organisational benefits and challenges.

Authors:  Steve G Gillard; Christine Edwards; Sarah L Gibson; Katherine Owen; Christine Wright
Journal:  BMC Health Serv Res       Date:  2013-05-24       Impact factor: 2.655

9.  Understanding recovery in the context of lived experience of personality disorders: a collaborative, qualitative research study.

Authors:  Steve Gillard; Kati Turner; Marion Neffgen
Journal:  BMC Psychiatry       Date:  2015-07-31       Impact factor: 3.630

10.  Barriers and Enablers to Shared Decision Making in Psychiatric Medication Management: A Qualitative Investigation of Clinician and Service Users' Views.

Authors:  Emma Kaminskiy; Yaara Zisman-Ilani; Nicola Morant; Shulamit Ramon
Journal:  Front Psychiatry       Date:  2021-06-17       Impact factor: 4.157

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