Literature DB >> 22647248

Why do patients and their families not use services for dementia? Perspectives from a developed Asian country.

June Lim1, Jenny Goh, Hui Ling Chionh, Philip Yap.   

Abstract

BACKGROUND: Despite the need for community services to support the intensive levels of care provided by dementia family caregivers, findings consistently indicate low rates of service utilization. This study aims to explore the extent of service use and examine the factors that may influence the use of services in a sample of family caregivers of Persons With Dementia (PWD).
METHODS: Two hundred and seventy-two family caregivers completed a questionnaire assessing caregiver burden, knowledge and use of services, dementia severity, frequency of problem behaviors and socio-demographic characteristics.
RESULTS: The rate of service use was modest with 39.9% using any of the available services. Reasons for non-use included lack of time (26.2%), perceived lack of need (18.5%), and presence of domestic help (21%). Separate regression models were evaluated to identify factors associated with caregiver service use and PWD service-use. Caregiver employment status (OR = 0.53, CI = 0.30-0.94) and knowledge of available services (OR = 4.22, CI = 2.23-7.98) contributed significantly to the model distinguishing caregiver service users from non-users. Knowledge of available services (OR = 2.14, CI = 1.23-3.71) was the only significant predictor of service use targeted at the PWD.
CONCLUSIONS: Given that knowledge significantly increased the odds of service use, strategies should be designed to raise awareness about the availability of dementia support services in the community and provide a deeper understanding about the value of such services. Future research should employ larger sample sizes and explore factors not measured in this study that might potentially better explain use of services.

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Year:  2012        PMID: 22647248     DOI: 10.1017/S1041610212000919

Source DB:  PubMed          Journal:  Int Psychogeriatr        ISSN: 1041-6102            Impact factor:   3.878


  7 in total

1.  Use of health and social care services in a cohort of Italian dementia patients.

Authors:  Silvia Scalmana; Anteo Di Napoli; Francesco Franco; Nicola Vanacore; Domenico Di Lallo; Maria Letizia Giarrizzo; Gabriella Guasticchi
Journal:  Funct Neurol       Date:  2013 Oct-Dec

2.  Factors Associated with Supportive Care Service Use Among California Alzheimer's Disease Patients and Their Caregivers.

Authors:  Lori A Newkirk; Virginia L Dao; Joshua T Jordan; Loren I Alving; Helen D Davies; Linda Hewett; Sherry A Beaudreau; Logan D Schneider; Christine E Gould; Christina F Chick; Rayna B Hirst; Sophia Miryam Schüssler-Fiorenza Rose; Lauren A Anker; Jared R Tinklenberg; Ruth O'Hara
Journal:  J Alzheimers Dis       Date:  2020       Impact factor: 4.472

3.  Economic Impact of Dementia by Disease Severity: Exploring the Relationship between Stage of Dementia and Cost of Care in Taiwan.

Authors:  Li-Jung Elizabeth Ku; Ming-Chyi Pai; Pei-Yu Shih
Journal:  PLoS One       Date:  2016-02-09       Impact factor: 3.240

4.  A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia.

Authors:  Chiara De Poli; Jan Oyebode; Mara Airoldi; Richard Glover
Journal:  BMC Health Serv Res       Date:  2020-07-15       Impact factor: 2.655

5.  Telehealth Support for Dementia Caregivers During the COVID-19 Pandemic: Lessons Learned From the NYU Family Support Program.

Authors:  Maureen K O'Connor; Roscoe Nicholson; Cynthia Epstein; Tiffany Donley; Rebecca Salant; Andrew H Nguyen; Steven Shirk; Elizabeth Stevenson; Mary S Mittelman
Journal:  Am J Geriatr Psychiatry       Date:  2022-08-30       Impact factor: 7.996

6.  Formal support for informal caregivers to older persons with dementia through the course of the disease: an exploratory, cross-sectional study.

Authors:  Connie Lethin; Helena Leino-Kilpi; Brenda Roe; Maria Martin Soto; Kai Saks; Astrid Stephan; Sandra Zwakhalen; Adelaida Zabalegui; Staffan Karlsson
Journal:  BMC Geriatr       Date:  2016-01-29       Impact factor: 3.921

Review 7.  Influences on the access to and use of formal community care by people with dementia and their informal caregivers: a scoping review.

Authors:  Anja Bieber; Natalie Nguyen; Gabriele Meyer; Astrid Stephan
Journal:  BMC Health Serv Res       Date:  2019-02-01       Impact factor: 2.655

  7 in total

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