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Literature DB >> 22644588

Quality of life and measures of quality of life in patients with neuromuscular disorders.

Ted M Burns¹, Christopher D Graham, Michael R Rose, Zachary Simmons.

Abstract

In this review we present an overview of quality of life (QOL) and QOL measures in neuromuscular disorders. We discuss the characteristics of QOL measures used in neuromuscular research, highlighting differences between generic versus disease-specific and global versus health-related QOL instruments. The phenomenon of response shift is reviewed. Commonly used QOL instruments are reviewed for amyotrophic lateral sclerosis, muscle diseases, myasthenia gravis, and polyneuropathy. We also review some of what is known about QOL for patients with these neuromuscular disorders.

Entities: Disease Species

Mesh：

Year: 2012 PMID： 22644588 DOI： 10.1002/mus.23245

Source DB: PubMed Journal: Muscle Nerve ISSN： 0148-639X Impact factor: 3.217

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Cited

29 in total

1. Construction and validation of the chronic acquired polyneuropathy patient-reported index (CAP-PRI): A disease-specific, health-related quality-of-life instrument.

Authors: Kelly G Gwathmey; Mark R Conaway; Reza Sadjadi; Amruta Joshi; Carolina Barnett; Vera Bril; Eduardo Ng; William David; Karissa Gable; Jeffrey T Guptill; Lisa D Hobson-Webb; Jennifer Dineen; Michael Hehir; Thomas H Brannagan; Esther Byun; Margaret Adler; Ted M Burns
Journal: Muscle Nerve Date: 2015-12-29 Impact factor: 3.217

2. Myotonic dystrophy health index: Correlations with clinical tests and patient function.

Authors: Chad Heatwole; Rita Bode; Nicholas E Johnson; Jeanne Dekdebrun; Nuran Dilek; Katy Eichinger; James E Hilbert; Eric Logigian; Elizabeth Luebbe; William Martens; Michael P Mcdermott; Shree Pandya; Araya Puwanant; Nan Rothrock; Charles Thornton; Barbara G Vickrey; David Victorson; Richard T Moxley
Journal: Muscle Nerve Date: 2015-12-29 Impact factor: 3.217

Review 3. Clinical Measures of Disease Progression in Amyotrophic Lateral Sclerosis.

Authors: Seward B Rutkove
Journal: Neurotherapeutics Date: 2015-04 Impact factor: 7.620

4. Pain location and intensity impacts function in persons with myotonic dystrophy type 1 and facioscapulohumeral dystrophy with chronic pain.

Authors: Jordi Miró; Kevin J Gertz; Gregory T Carter; Mark P Jensen
Journal: Muscle Nerve Date: 2014-06 Impact factor: 3.217

5. Validation of a simple disease-specific, quality-of-life measure for diabetic polyneuropathy: CAPPRI.

Authors: Kelly G Gwathmey; Reza Sadjadi; William B Horton; Mark R Conaway; Carolina Barnett-Tapia; Vera Bril; James W Russell; Aziz Shaibani; Michelle L Mauermann; Michael K Hehir; Noah Kolb; Jeffrey Guptill; Lisa Hobson-Webb; Karissa Gable; Shruti Raja; Nicholas Silvestri; Gil I Wolfe; A Gordon Smith; Rabia Malik; Rebecca Traub; Amruta Joshi; Matthew P Elliott; Sarah Jones; Ted M Burns
Journal: Neurology Date: 2018-05-04 Impact factor: 9.910

9. Major motor-functional determinants associated with poor self-reported health-related quality of life in myasthenia gravis patients.

Authors: David Cioncoloni; Stefania Casali; Federica Ginanneschi; Marisa Carone; Boni Veronica; Alessandro Rossi; Fabio Giannini
Journal: Neurol Sci Date: 2016-04-01 Impact factor: 3.307

10. The relationship between physical symptoms and health-related quality of life in oculopharyngeal muscular dystrophy.

Authors: Sarah Youssof
Journal: Muscle Nerve Date: 2016-03-01 Impact factor: 3.217