Literature DB >> 22630612

The impact of sport on children with haemophilia.

K Khair1, A Littley, A Will, S von Mackensen.   

Abstract

Sport is nowadays perceived as beneficial for children with haemophilia, as good muscle strength supports joints and may reduce bleed frequency; by contrast psychological benefits are less known. This study introduces the impact of sport on health-related quality of life (HRQoL) and physical performance in children with haemophilia. A cross-sectional, multi-site, study of boys aged 6-17 years with haemophilia A or B of any severity, current or past inhibitor, which assessed physical performance, sporting activity and HRQoL using age appropriate questionnaires including KINDL, Haemo-QoL and HEP-Test-Q. Eighty-four haemophilic boys (23 mild, 19 moderate, 42 severe) with a mean age of 11.52 years (SD = 3.4) were enrolled from two haemophilia centres in the United Kingdom. 28.4% were overweight/obese according to their BMI/age and had a good orthopaedic status (M = 1.55, SD = 3.3). Boys watching < 1-2 h of TV/PC/day had fewer days lost (M = 3, SD = 3.2) than those with a more sedentary lifestyle (M = 9.40, SD = 7.1) (P < 0.032). 90.5% participated in regular sporting activity; 79.9% at least twice a week. HRQoL in children was generally good, with highest impairments in boys aged 8-12 years. Boys aged 8-16 years reported good physical performance (M = 80.0, SD = 16.0) with highest impairments in the dimensions 'endurance' and 'mobility'. Boys doing sport had a significant better physical performance and HRQoL than boys not doing sport. Sedentary life styles had a negative impact on the subjective physical performance and number of days lost of children. Encouraging haemophilic boys to participate in sport will have a direct impact on their overall HRQoL.
© 2012 Blackwell Publishing Ltd.

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Year:  2012        PMID: 22630612     DOI: 10.1111/j.1365-2516.2012.02857.x

Source DB:  PubMed          Journal:  Haemophilia        ISSN: 1351-8216            Impact factor:   4.287


  4 in total

1.  The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease.

Authors:  Séverine Henrard; Brecht Devleesschauwer; Philippe Beutels; Michael Callens; Frank De Smet; Cedric Hermans; Niko Speybroeck
Journal:  Orphanet J Rare Dis       Date:  2014-03-21       Impact factor: 4.123

Review 2.  Strategies to encourage physical activity in patients with hemophilia to improve quality of life.

Authors:  Miwa Goto; Hideyuki Takedani; Kazuhiko Yokota; Nobuhiko Haga
Journal:  J Blood Med       Date:  2016-05-17

3.  Sports participation and physical activity in adult Dutch and Swedish patients with severe haemophilia: A comparison between intermediate- and high-dose prophylaxis.

Authors:  Olav Versloot; Erik Berntorp; Pia Petrini; Rolf Ljung; Jan Astermark; Margareta Holmström; Piet de Kleijn; Kathelijn Fischer
Journal:  Haemophilia       Date:  2019-01-28       Impact factor: 4.287

4.  Fitness enhances psychosocial well-being and self-confidence in young men with hemophilia: Results from Project GYM.

Authors:  Kate Khair; Mike Holland; Sandra Dodgson; Paul McLaughlin; Simon Fletcher; Deborah Christie
Journal:  Res Pract Thromb Haemost       Date:  2021-11-26
  4 in total

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