Literature DB >> 22617864

In search of "anything that would help": parent perspectives on emerging neurotechnologies.

Emily L Borgelt1, Daniel Z Buchman1, Margaret Weiss1, Judy Illes2.   

Abstract

OBJECTIVE: This qualitative study explores parents' perceptions about the future clinical translation of neurotechnologies--neuroimaging and genetic testing separately and together--for instrumentalization in the diagnosis and treatment of childhood ADHD.
METHOD: We conducted in-person, semi-structured interviews with parents of minor children diagnosed with ADHD (N = 26) and analyzed 11.75 hr of data using constant comparative analysis.
RESULTS: Receptivity to technology and anticipation of potential benefits overshadowed discussion of risks or concerns. Four key areas of potential impact on parent experience are (a) insight and acceptance, (b) treatment and adherence, (c) stigma and blame, and (d) the endeavor to access resources.
CONCLUSION: The findings highlight high receptivity to emerging neurotechnologies for ADHD, key areas for which parents anticipate support from these technologies, and ethics challenges to clinical translation in light of parents' salient hope and minimal consideration of risk in their pursuit of "anything that would help."
© 2012 SAGE Publications.

Entities:  

Keywords:  ADHD; neuroethics; neuroimaging; psychiatry; qualitative research

Mesh:

Year:  2012        PMID: 22617864     DOI: 10.1177/1087054712445781

Source DB:  PubMed          Journal:  J Atten Disord        ISSN: 1087-0547            Impact factor:   3.256


  9 in total

1.  Nature vs. Nurture in Precision Education: Insights of Parents and the Public.

Authors:  Maya Sabatello; Bree Martin; Thomas Corbeil; Seonjoo Lee; Bruce G Link; Paul S Appelbaum
Journal:  AJOB Empir Bioeth       Date:  2021-10-13

2.  Neurobiological limits and the somatic significance of love: Caregivers' engagements with neuroscience in Scottish parenting programmes.

Authors:  Tineke Broer; Martyn Pickersgill; Sarah Cunningham-Burley
Journal:  Hist Human Sci       Date:  2020-10-21       Impact factor: 0.690

3.  Genetic Testing and Neuroimaging: Trading off Benefit and Risk for Youth with Mental Illness.

Authors:  Grace Lee; Ania Mizgalewicz; Emily Borgelt; Judy Illes
Journal:  Ann Psychiatry Ment Health       Date:  2014-10-14

4.  The Promise of Neurotechnology in Clinical Translational Science.

Authors:  Susan W White; John A Richey; Denis Gracanin; Martha Ann Bell; Stephen LaConte; Marika Coffman; Andrea Trubanova; Inyoung Kim
Journal:  Clin Psychol Sci       Date:  2014-10-17

5.  The double helix at school: Behavioral genetics, disability, and precision education.

Authors:  Maya Sabatello; Beverly J Insel; Thomas Corbeil; Bruce G Link; Paul S Appelbaum
Journal:  Soc Sci Med       Date:  2021-04-20       Impact factor: 5.379

6.  Predictive Psychiatric Genetic Testing in Minors: An Exploration of the Non-Medical Benefits.

Authors:  Arianna Manzini; Danya F Vears
Journal:  J Bioeth Inq       Date:  2017-12-11       Impact factor: 1.352

7.  ADHD: Is There an App for That? A Suitability Assessment of Apps for the Parents of Children and Young People With ADHD.

Authors:  Lauren Powell; Jack Parker; Valerie Harpin
Journal:  JMIR Mhealth Uhealth       Date:  2017-10-13       Impact factor: 4.773

8.  Choice and Trade-offs: Parent Decision Making for Neurotechnologies for Pediatric Drug-Resistant Epilepsy.

Authors:  Viorica Hrincu; Patrick J McDonald; Mary B Connolly; Mark J Harrison; George M Ibrahim; Robert P Naftel; Winston Chiong; Armaghan Alam; Urs Ribary; Judy Illes
Journal:  J Child Neurol       Date:  2021-06-02       Impact factor: 1.987

9.  Neuroimaging in mental health care: voices in translation.

Authors:  Emily L Borgelt; Daniel Z Buchman; Judy Illes
Journal:  Front Hum Neurosci       Date:  2012-10-22       Impact factor: 3.169

  9 in total

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