D J Rintell1, D Frankel, S L Minden, B I Glanz. 1. Partners Multiple Sclerosis Center, Brigham and Women's Hospital, Boston, MA 02115, USA. drintell@partners.org
Abstract
OBJECTIVE: The objective was to obtain multiple sclerosis (MS) patients' report on their experience receiving mental health care. METHODS: We convened focus groups at four MS clinical care centers to identify the aspects of mental health care that were important to people with MS. All patients (n=54) had received mental health care in the past year. Data were analyzed by coding comments under specific themes. RESULTS: Patients wanted prompt intervention after diagnosis and ongoing screening for mental health problems; they prefer providers with knowledge about MS and experience working with people with MS; they appreciated being able to access mental health services that were on-site at their MS center and noted the benefit of inclusion of family members in treatment. CONCLUSIONS: Mental health care should be provided promptly after diagnosis, with regular screening and interventions that include family members as indicated thereafter. Mental health providers should be familiar with MS, collaborate with neurologic care providers and provide services on-site at MS centers.
OBJECTIVE: The objective was to obtain multiple sclerosis (MS) patients' report on their experience receiving mental health care. METHODS: We convened focus groups at four MS clinical care centers to identify the aspects of mental health care that were important to people with MS. All patients (n=54) had received mental health care in the past year. Data were analyzed by coding comments under specific themes. RESULTS:Patients wanted prompt intervention after diagnosis and ongoing screening for mental health problems; they prefer providers with knowledge about MS and experience working with people with MS; they appreciated being able to access mental health services that were on-site at their MS center and noted the benefit of inclusion of family members in treatment. CONCLUSIONS: Mental health care should be provided promptly after diagnosis, with regular screening and interventions that include family members as indicated thereafter. Mental health providers should be familiar with MS, collaborate with neurologic care providers and provide services on-site at MS centers.
Authors: Scott D Newsome; Philip J Aliotta; Jacquelyn Bainbridge; Susan E Bennett; Gary Cutter; Kaylan Fenton; Fred Lublin; Dorothy Northrop; David Rintell; Bryan D Walker; Megan Weigel; Kathleen Zackowski; David E Jones Journal: Int J MS Care Date: 2017 Jan-Feb
Authors: Jane Desborough; Crystal Brunoro; Anne Parkinson; Katrina Chisholm; Mark Elisha; Janet Drew; Vanessa Fanning; Christian Lueck; Anne Bruestle; Matthew Cook; Hanna Suominen; Antonio Tricoli; Adam Henschke; Christine Phillips Journal: Health Expect Date: 2020-06-24 Impact factor: 3.377