PURPOSE: The purpose of this review is to describe the prevalence of psychological distress in parents of children with type 1 diabetes (T1DM), the relationship between parental psychological distress and health outcomes, and parents' psychological experience of having a child with T1DM. Clinical and research implications are presented. METHOD: A systematic mixed-studies review was undertaken to review the quantitative and qualitative research on the parental experience of having a child with T1DM. A total of 34 articles met the inclusion criteria and were included in the review. RESULTS: The prevalence of parental psychological distress across all studies ranged from 10% to 74%, with an average of 33.5% of parents reporting distress at diagnosis and 19% of parents reporting distress 1 to 4 years after diagnosis. Parental psychological distress in parents of children with T1DM, regardless of how it was defined, was associated with higher child self-report of stress and depressive symptoms, more problematic child behavior, and lower child self-report of quality of life. Parental psychological distress also had negative effects on diabetes management. Themes of the qualitative synthesis indicated that parents perceived T1DM as a difficult diagnosis that contributed to significant family disruption. Adjustment occurred over time; however, ongoing stress was experienced. CONCLUSIONS: Screening for psychological distress in parents of children with T1DM is indicated, and preventive interventions are needed.
PURPOSE: The purpose of this review is to describe the prevalence of psychological distress in parents of children with type 1 diabetes (T1DM), the relationship between parental psychological distress and health outcomes, and parents' psychological experience of having a child with T1DM. Clinical and research implications are presented. METHOD: A systematic mixed-studies review was undertaken to review the quantitative and qualitative research on the parental experience of having a child with T1DM. A total of 34 articles met the inclusion criteria and were included in the review. RESULTS: The prevalence of parental psychological distress across all studies ranged from 10% to 74%, with an average of 33.5% of parents reporting distress at diagnosis and 19% of parents reporting distress 1 to 4 years after diagnosis. Parental psychological distress in parents of children with T1DM, regardless of how it was defined, was associated with higher child self-report of stress and depressive symptoms, more problematic child behavior, and lower child self-report of quality of life. Parental psychological distress also had negative effects on diabetes management. Themes of the qualitative synthesis indicated that parents perceived T1DM as a difficult diagnosis that contributed to significant family disruption. Adjustment occurred over time; however, ongoing stress was experienced. CONCLUSIONS: Screening for psychological distress in parents of children with T1DM is indicated, and preventive interventions are needed.
Authors: Randi Streisand; Eleanor R Mackey; Brenda M Elliot; Lauren Mednick; Ina M Slaughter; Jane Turek; Audrey Austin Journal: Patient Educ Couns Date: 2008-11
Authors: Kara R Harrington; Claire T Boyle; Kellee M Miller; Marisa E Hilliard; Barbara J Anderson; Michelle Van Name; Linda A DiMeglio; Lori M Laffel Journal: J Diabetes Sci Technol Date: 2017-08-03
Authors: Amy E Noser; Hongying Dai; Arwen M Marker; Jennifer K Raymond; Shideh Majidi; Mark A Clements; Kelly R Stanek; Susana R Patton Journal: Health Psychol Date: 2018-12-20 Impact factor: 4.267