Literature DB >> 22570319

Longitudinal lung function and structural changes in children with primary ciliary dyskinesia.

Marie Lémery Magnin1, Pierrick Cros, Nicole Beydon, Malika Mahloul, Aline Tamalet, Estelle Escudier, Annick Clément, Hubert Ducou Le Pointe, Sylvain Blanchon.   

Abstract

BACKGROUND AND OBJECTIVES: Functional and structural lung evaluations are part of the follow-up of patients with primary ciliary dyskinesia (PCD). We aimed to evaluate transversal and longitudinal relationships between lung function test (LFT) and chest computed tomography (CT) in children with PCD, in stable clinical condition.
MATERIALS AND METHODS: Data from children followed in the French National Center were retrospectively collected. Inclusion criteria were (i) definitive diagnosis of PCD, (ii) age less than 15 years at the beginning of follow-up, (iii) at least 8 years of follow-up, (iv) at least two couples of concurrent CT and LFT available in a phase of clinical stability of the lung disease without modification of the treatment regimen in the last 4 weeks. Twenty children (median age at entry 4.6 years, median follow-up 15.4 years) were included. Concurrent LFT (blood gas and spirometry) and CT (score) results were recorded.
RESULTS: LFT indices (PaO(2) (n = 210), FVC, FEV(1) , FEF(2575%) (n = 195)) significantly decreased with age, and the mean annual decrease (z-score (% predicted)) was -0.17 (-0.49%), -0.09 (-0.50%), -0.10 (-0.89%), and -0.07 (-1.73%), respectively. First CT (median age 8.7 years) revealed bronchiectasis (70%), mucous plugging (70%), peribronchial thickening (90%), parenchymal abnormalities (65%), and hyperinflation (50%). CT scores (n = 74) significantly increased with age, and was negatively correlated to PaO(2), FVC, FEV(1), and FEF(2575%) longitudinal changes.
CONCLUSION: In stable clinical condition, functional, and structural progressive impairments significantly correlated in children with PCD. Further prospective studies, including large populations of patients with various levels of disease severity, are needed to confirm whether lung function follow-up can be used to adjust CT frequency and help at minimizing the radiation burden in children with a good life expectancy.
Copyright © 2012 Wiley Periodicals, Inc.

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Year:  2012        PMID: 22570319     DOI: 10.1002/ppul.22577

Source DB:  PubMed          Journal:  Pediatr Pulmonol        ISSN: 1099-0496


  19 in total

1.  Clinical features of childhood primary ciliary dyskinesia by genotype and ultrastructural phenotype.

Authors:  Stephanie D Davis; Thomas W Ferkol; Margaret Rosenfeld; Hye-Seung Lee; Sharon D Dell; Scott D Sagel; Carlos Milla; Maimoona A Zariwala; Jessica E Pittman; Adam J Shapiro; Johnny L Carson; Jeffrey P Krischer; Milan J Hazucha; Matthew L Cooper; Michael R Knowles; Margaret W Leigh
Journal:  Am J Respir Crit Care Med       Date:  2015-02-01       Impact factor: 21.405

2.  Clinical and genetic features of primary ciliary dyskinesia in a cohort of consecutive clinically suspect children in western China.

Authors:  Ying Li; Wenlong Fu; Gang Geng; Jihong Dai; Zhou Fu; Daiyin Tian
Journal:  BMC Pediatr       Date:  2022-07-08       Impact factor: 2.567

3.  Elastase Exocytosis by Airway Neutrophils Is Associated with Early Lung Damage in Children with Cystic Fibrosis.

Authors:  Camilla Margaroli; Luke W Garratt; Hamed Horati; A Susanne Dittrich; Timothy Rosenow; Samuel T Montgomery; Dario L Frey; Milton R Brown; Carsten Schultz; Lokesh Guglani; Anthony Kicic; Limin Peng; Bob J Scholte; Marcus A Mall; Hettie M Janssens; Stephen M Stick; Rabindra Tirouvanziam
Journal:  Am J Respir Crit Care Med       Date:  2019-04-01       Impact factor: 21.405

4.  Validation of pediatric health-related quality of life instruments for primary ciliary dyskinesia (QOL-PCD).

Authors:  Laura Behan; Margaret W Leigh; Sharon D Dell; Alexandra L Quittner; Claire Hogg; Jane S Lucas
Journal:  Pediatr Pulmonol       Date:  2019-09-01

Review 5.  Understanding Primary Ciliary Dyskinesia and Other Ciliopathies.

Authors:  Amjad Horani; Thomas W Ferkol
Journal:  J Pediatr       Date:  2020-11-23       Impact factor: 4.406

6.  Relationships Between Bronchoscopy, Microbiology, and Radiology in Noncystic Fibrosis Bronchiectasis.

Authors:  Mustafa Atilla Nursoy; Ayse Ayzit Kilinc; Fatouma Khalif Abdillahi; Feyza Ustabas Kahraman; Lina Muhammed Al Shadfan; Bilge Sumbul; Sabriye Sennur Bilgin; Fatma Betul Cakir; Hayrettin Daskaya; Erkan Cakir
Journal:  Pediatr Allergy Immunol Pulmonol       Date:  2021-05-14       Impact factor: 0.885

7.  Impaired Growth during Childhood in Patients with Primary Ciliary Dyskinesia.

Authors:  Tamara Svobodová; Jana Djakow; Daniela Zemková; Adam Cipra; Petr Pohunek; Jan Lebl
Journal:  Int J Endocrinol       Date:  2013-12-12       Impact factor: 3.257

8.  Validation of a health-related quality of life instrument for primary ciliary dyskinesia (QOL-PCD).

Authors:  Laura Behan; Margaret W Leigh; Sharon D Dell; Audrey Dunn Galvin; Alexandra L Quittner; Jane S Lucas
Journal:  Thorax       Date:  2017-02-28       Impact factor: 9.139

9.  Enhanced response to pulmonary Streptococcus pneumoniae infection is associated with primary ciliary dyskinesia in mice lacking Pcdp1 and Spef2.

Authors:  Casey W McKenzie; Joshua M Klonoski; Taylor Maier; Glenda Trujillo; Peter F Vitiello; Victor C Huber; Lance Lee
Journal:  Cilia       Date:  2013-12-20

Review 10.  Diagnosis, monitoring, and treatment of primary ciliary dyskinesia: PCD foundation consensus recommendations based on state of the art review.

Authors:  Adam J Shapiro; Maimoona A Zariwala; Thomas Ferkol; Stephanie D Davis; Scott D Sagel; Sharon D Dell; Margaret Rosenfeld; Kenneth N Olivier; Carlos Milla; Sam J Daniel; Adam J Kimple; Michele Manion; Michael R Knowles; Margaret W Leigh
Journal:  Pediatr Pulmonol       Date:  2015-09-29
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