Literature DB >> 22565580

Ethical and epistemological insights: a case study of participatory action research with young people.

Cathy Chabot1, Jean A Shoveller, Grace Spencer, Joy L Johnson.   

Abstract

Debates over how to determine age of consent for youth to participate in research feature prominently in the practice of researchers, research ethics boards (REBs), and community decision makers working with youth. In particular, tensions can arise over how the ethical principles of beneficence, autonomy, and justice are interpreted and applied in research involving young people. We discuss our experiences obtaining ethical approval to conduct a participatory action research project involving youth and the differences of opinion we encountered regarding underage youth's capability to make informed consent. We suggest that researchers, REBs, and community decision makers all share a responsibility to conduct proactive outreach to youth participants, so that they are adequately informed of their rights related to research.

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Year:  2012        PMID: 22565580     DOI: 10.1525/jer.2012.7.2.20

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  4 in total

1.  Photography and Social Media Use in Community-Based Participatory Research with Youth: Ethical Considerations.

Authors:  Maryam Kia-Keating; Diana Santacrose; Sabrina Liu
Journal:  Am J Community Psychol       Date:  2017-09-25

2.  Obtaining waivers of parental consent: A strategy endorsed by gay, bisexual, and queer adolescent males for health prevention research.

Authors:  Dalmacio Flores; Ross McKinney; Joyell Arscott; Julie Barroso
Journal:  Nurs Outlook       Date:  2017-09-18       Impact factor: 3.250

3.  Enhancing the Ethical Conduct of HIV Research with Migrant Sex Workers: Human Rights, Policy, and Social Contextual Influences.

Authors:  Shira M Goldenberg; Kimberly C Brouwer; Teresita Rocha Jimenez; Sonia Morales Miranda; Monica Rivera Mindt
Journal:  PLoS One       Date:  2016-05-09       Impact factor: 3.240

4.  'You want to deal with power while riding on power': global perspectives on power in participatory health research and co-production approaches.

Authors:  Beatrice R Egid; María Roura; Bachera Aktar; Jessica Amegee Quach; Ivy Chumo; Sónia Dias; Guillermo Hegel; Laundette Jones; Robinson Karuga; Luret Lar; Yaimie López; Apurvakumar Pandya; Theresa C Norton; Payam Sheikhattari; Tara Tancred; Nina Wallerstein; Emily Zimmerman; Kim Ozano
Journal:  BMJ Glob Health       Date:  2021-11
  4 in total

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