Literature DB >> 22565355

Take the challenge: strategies to improve support for parents of chronically ill children.

Kimberly Newton1, Kimberley Lamarche.   

Abstract

Parents of children with chronic illnesses experience tremendous burden when caring for their children at home. There are many challenges that are present throughout the course of chronic illnesses. To provide better care to the family caring for an ill child at home, clinicians must understand the experiences family members go through on a daily basis. The purpose of this article is to help clinicians better understand these parental experiences; by increasing clinicians' awareness, strategies can then be used, which will improve the outcome for the child, parents, and siblings.

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Year:  2012        PMID: 22565355     DOI: 10.1097/NHH.0b013e318252c3d5

Source DB:  PubMed          Journal:  Home Healthc Nurse        ISSN: 0884-741X


  1 in total

Review 1.  Consensus guideline for the diagnosis and treatment of aromatic l-amino acid decarboxylase (AADC) deficiency.

Authors:  Tessa Wassenberg; Marta Molero-Luis; Kathrin Jeltsch; Georg F Hoffmann; Birgit Assmann; Nenad Blau; Angeles Garcia-Cazorla; Rafael Artuch; Roser Pons; Toni S Pearson; Vincenco Leuzzi; Mario Mastrangelo; Phillip L Pearl; Wang Tso Lee; Manju A Kurian; Simon Heales; Lisa Flint; Marcel Verbeek; Michèl Willemsen; Thomas Opladen
Journal:  Orphanet J Rare Dis       Date:  2017-01-18       Impact factor: 4.123

  1 in total

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