Literature DB >> 22562957

Critical social theory approach to disclosure of genomic incidental findings.

Jeffrey L Bevan1, Julia N Senn-Reeves, Ben R Inventor, Shawna M Greiner, Karen M Mayer, Mary T Rivard, Rebekah J Hamilton.   

Abstract

Technology has expanded genomic research and the complexity of extracted gene-related information. Health-related genomic incidental findings pose new dilemmas for nurse researchers regarding the ethical application of disclosure to participants. Consequently, informed consent specific to incidental findings is recommended. Critical Social Theory is used as a guide in recognition of the changing meaning of informed consent and to serve as a framework to inform nursing of the ethical application of disclosure consent in genomic nursing research practices.

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Year:  2012        PMID： 22562957     DOI： 10.1177/0969733011433924

Source DB:  PubMed          Journal:  Nurs Ethics        ISSN： 0969-7330            Impact factor:   2.874


  5 in total

1.  Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

Authors:  Susan M Wolf; Rebecca Branum; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

Review 2.  Incidental findings from clinical genome-wide sequencing: a review.

Authors:  Z Lohn; S Adam; P H Birch; J M Friedman
Journal:  J Genet Couns       Date:  2013-05-26       Impact factor: 2.537

3.  Genomic information and a person's right not to know: A closer look at variations in hypothetical informational preferences in a German sample.

Authors:  Laura Flatau; Markus Reitt; Gunnar Duttge; Christian Lenk; Barbara Zoll; Wolfgang Poser; Alexandra Weber; Urs Heilbronner; Marcella Rietschel; Jana Strohmaier; Rebekka Kesberg; Jonas Nagel; Thomas G Schulze
Journal:  PLoS One       Date:  2018-06-20       Impact factor: 3.240

4.  A first voice perspective of people experiencing homelessness on preferences for the end-of-life and end-of-life care during the COVID-19 pandemic.

Authors:  Cait Vihvelin; Viraji Rupasinghe; Jean Hughes; Jeff Karabanow; Lori E Weeks
Journal:  BMC Res Notes       Date:  2022-04-15

Review 5.  Informed consent, genomic research and mental health: A integrative review.

Authors:  Nina Kilkku; Arja Halkoaho
Journal:  Nurs Ethics       Date:  2022-02-04       Impact factor: 3.344
  5 in total

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