Literature DB >> 22545720

Revealing and concealing Ill identity: a performance narrative of IBD disclosure.

Nicole L Defenbaugh1.   

Abstract

Revealing a hidden, chronic illness is a risky and vulnerable act. Ill individuals often remain socially stigmatized, and those who live with invisible illness must legitimize their ill identity since they infrequently look sick. For individuals with inflammatory bowel disease (IBD), disclosing one's illness carries unique challenges because of the grotesque and taboo nature of the disease. To this end, the bathroom or "water closet" is more than a functional place-it is a space to hide one's ill identity. For many, the point of departure from safety to vulnerability occurs when there is a desire to disclose. In this descriptive essay, revelation of an invisible illness, IBD, and disclosure to others are explored as embodied and situated communication. Through performance narrative, the author shares stories of her disclosive moments to inform others about IBD, explores how the water closet can be a metaphoric boundary, examines various strategies used in revealing hidden illness, and offers possible implications for IBD disclosure to the self and relationships with others.

Entities:  

Mesh:

Year:  2012        PMID: 22545720     DOI: 10.1080/10410236.2012.666712

Source DB:  PubMed          Journal:  Health Commun        ISSN: 1041-0236


  5 in total

1.  (In)Visible illness: A photovoice study of the lived experience of self-managing rheumatoid arthritis.

Authors:  Susie Donnelly; Anthony G Wilson; Hasheem Mannan; Claire Dix; Laura Whitehill; Thilo Kroll
Journal:  PLoS One       Date:  2021-03-08       Impact factor: 3.240

2.  "I Don't Like to Make a Big Thing out of It": A Qualitative Interview-Based Study Exploring Factors Affecting Whether Young People Tell or Do Not Tell Their Friends about Their IBD.

Authors:  Bernie Carter; Alison Rouncefield-Swales; Lucy Bray; Lucy Blake; Stephen Allen; Chris Probert; Kay Crook; Pamela Qualter
Journal:  Int J Chronic Dis       Date:  2020-06-11

3.  The act of telling: South African women's narratives of HIV status disclosure to intimate partners in the HPTN 071 (PopART) HIV prevention trial.

Authors:  Lario Viljoen; Dillon Wademan; Graeme Hoddinott; Virginia Bond; Janet Seeley; Peter Bock; Sarah Fidler; Lindsey Reynolds
Journal:  Womens Health (Lond)       Date:  2021 Jan-Dec

4.  Sustaining, Forming, and Letting Go of Friendships for Young People with Inflammatory Bowel Disease (IBD): A Qualitative Interview-Based Study.

Authors:  Alison Rouncefield-Swales; Bernie Carter; Lucy Bray; Lucy Blake; Stephen Allen; Chris Probert; Kay Crook; Pamela Qualter
Journal:  Int J Chronic Dis       Date:  2020-09-03

5.  Depression, anxiety, and loneliness among adolescents and young adults with IBD in the UK: the role of disease severity, age of onset, and embarrassment of the condition.

Authors:  Pamela Qualter; Alison Rouncefield-Swales; Lucy Bray; Lucy Blake; Steven Allen; Chris Probert; Kay Crook; Bernie Carter
Journal:  Qual Life Res       Date:  2020-09-30       Impact factor: 3.440

  5 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.