Literature DB >> 22543260

"It's no big deal": adolescents with congenital heart disease.

Kathleen Shearer1, Gwen R Rempel, Colleen M Norris, Joyce Magill-Evans.   

Abstract

Improved survival rates for congenital heart disease (CHD) have increasing numbers requiring lifelong specialized health care. In this interpretive description, interview data were analyzed to understand how adolescents with CHD describe everyday life and relate to questions about quality of life. Most viewed themselves as normal, their CHD something that they situated into the foreground or background of their lives as it suited their needs. They spoke of quality-of-life issues in a concrete manner focusing on physical activity limitations and their need to fit in. These findings can direct interventions for adolescents with CHD for transition to adulthood.
Copyright © 2013 Elsevier Inc. All rights reserved.

Entities:  

Mesh:

Year:  2012        PMID: 22543260     DOI: 10.1016/j.pedn.2012.03.031

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  8 in total

Review 1.  Children's experiences of congenital heart disease: a systematic review of qualitative studies.

Authors:  Lauren S H Chong; Dominic A Fitzgerald; Jonathan C Craig; Karine E Manera; Camilla S Hanson; David Celermajer; Julian Ayer; Nadine A Kasparian; Allison Tong
Journal:  Eur J Pediatr       Date:  2018-01-11       Impact factor: 3.183

2.  Variabilities in the mortality-related resource utilisation for congenital heart disease.

Authors:  David A Danford; Quentin Karels; Shelby Kutty
Journal:  Open Heart       Date:  2016-05-06

3.  The Burden of Care: Mothers' Experiences of Children with Congenital Heart Disease.

Authors:  Sakinne Sabzevari; Monirsadat Nematollahi; Tayebeh Mirzaei; Ali Ravari
Journal:  Int J Community Based Nurs Midwifery       Date:  2016-10

4.  Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult care.

Authors:  Åsa Burström; Ewa-Lena Bratt; Björn Frenckner; Margret Nisell; Katarina Hanséus; Annika Rydberg; Maria Öjmyr-Joelsson
Journal:  Eur J Pediatr       Date:  2017-05-16       Impact factor: 3.183

5.  A "pretty normal" life: a qualitative study exploring young people's experience of life with bronchiectasis.

Authors:  Julie Blamires; Annette Dickinson; El Shadan Tautolo; Catherine A Byrnes
Journal:  Int J Qual Stud Health Well-being       Date:  2021-12

6.  Interactions with Home and Health Environments Discourage Physical Activity: Reports from Children with Complex Congenital Heart Disease and Their Parents.

Authors:  Patricia E Longmuir; Mary Corey; Brian W McCrindle
Journal:  Int J Environ Res Public Health       Date:  2021-05-04       Impact factor: 3.390

7.  Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin.

Authors:  Brith Andresen; Marit Helen Andersen; Harald Lindberg; Gaute Døhlen; Erik Fosse
Journal:  BMJ Open       Date:  2014-07-29       Impact factor: 2.692

8.  Optimism despite profound uncertainty: school and social relationships in adolescents with single ventricle heart disease.

Authors:  Jennifer K Peterson; Ellen F Olshansky; Yuqing Guo; Lorraine S Evangelista; Nancy A Pike
Journal:  Cardiol Young       Date:  2020-11-12       Impact factor: 1.093

  8 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.