Literature DB >> 22538263

The unmet needs of emerging adults with a cancer diagnosis: a qualitative study.

Pandora Patterson1, Brett Millar, Natacha Desille, Fiona McDonald.   

Abstract

BACKGROUND: Emerging adulthood is the life stage between adolescence and young adulthood, and it has been associated with several important developmental milestones. A cancer diagnosis has the potential to disrupt the normal achievement of these milestones. Many psychosocial themes relevant to emerging adults living with cancer have been identified, but there has been only limited research into the needs of this group.
OBJECTIVE: The present study seeks to contribute to this limited research base and inform our understanding of the needs of emerging adults with a diagnosis of cancer from a developmental perspective that appreciates the key transitional tasks of emerging adulthood.
METHODS: This needs-based qualitative study was conducted with 14 young people with a diagnosis of cancer, aged 20 to 25 years. Nine participated in a focus group, and the remaining 5 participated in 1-on-1 telephone interviews.
RESULTS: The needs of these emerging adults in relation to their cancer experience were grouped into 6 themes: information, healthcare provision, daily living, interpersonal support, identity renegotiation, and emotional distress.
CONCLUSION: A cancer experience poses the potential for significant impact on the 4 main requirements for the achievement of adulthood: accepting responsibility for oneself, deciding on personal beliefs and values, establishing relationships with parents as equals, and becoming financially independent. IMPLICATIONS FOR PRACTICE: This study provides a useful framework for understanding the needs of emerging adults with a diagnosis of cancer that will assist healthcare professionals in the development and delivery of more targeted supportive care and interventions.

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Year:  2012        PMID: 22538263     DOI: 10.1097/NCC.0b013e31822d9105

Source DB:  PubMed          Journal:  Cancer Nurs        ISSN: 0162-220X            Impact factor:   2.592


  6 in total

1.  Towards a better quality of life (QoL) for patients with pituitary diseases: results from a focus group study exploring QoL.

Authors:  Cornelie D Andela; Nicolasine D Niemeijer; Margreet Scharloo; Jitske Tiemensma; Shaaji Kanagasabapathy; Alberto M Pereira; Noëlle G A Kamminga; Ad A Kaptein; Nienke R Biermasz
Journal:  Pituitary       Date:  2015-02       Impact factor: 4.107

2.  The partner's perspective of the impact of pituitary disease: Looking beyond the patient.

Authors:  Cornelie D Andela; Jitske Tiemensma; Adrian A Kaptein; Margreet Scharloo; Alberto M Pereira; Noëlle Ga Kamminga; Nienke R Biermasz
Journal:  J Health Psychol       Date:  2017-03-01

3.  The challenges of making informed decisions about treatment and trial participation following a cancer diagnosis: a qualitative study involving adolescents and young adults with cancer and their caregivers.

Authors:  Ruth I Hart; David A Cameron; Fiona J Cowie; Jeni Harden; Nicholas B Heaney; David Rankin; Angela B Jesudason; Julia Lawton
Journal:  BMC Health Serv Res       Date:  2020-01-08       Impact factor: 2.655

4.  Using Intervention Mapping to Develop an Education and Career Support Service for Adolescents and Young Adults Diagnosed with Cancer: Identification of the Contextual Factors That Influence Participation in Education and Employment.

Authors:  Esther L Davis; Kristina S Clarke; Pandora Patterson; Jennifer Cohen
Journal:  Cancers (Basel)       Date:  2022-09-22       Impact factor: 6.575

Review 5.  Consensus Among International Ethical Guidelines for the Provision of Videoconferencing-Based Mental Health Treatments.

Authors:  Ursula M Sansom-Daly; Claire E Wakefield; Brittany C McGill; Helen L Wilson; Pandora Patterson
Journal:  JMIR Ment Health       Date:  2016-05-18

Review 6.  What Are the Psycho-Social and Information Needs of Adolescents and Young Adults Cancer Care Consumers with Intellectual Disability? A Systematic Review of Evidence with Recommendations for Future Research and Practice.

Authors:  Éidín Ní Shé; Fiona E J McDonald; Laurel Mimmo; Xiomara Skrabal Ross; Bronwyn Newman; Pandora Patterson; Reema Harrison
Journal:  Children (Basel)       Date:  2021-12-02
  6 in total

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