Literature DB >> 22535649

Credibility and the 'professionalized' lay expert: reflections on the dilemmas and opportunities of public involvement in health research.

Jill Thompson1, Paul Bissell, Cindy Cooper, Chris J Armitage, Rosemary Barber.   

Abstract

Contemporary health policy in England places increasing emphasis on patient and public involvement (PPI) in health and health research. With regard to the latter, it has been suggested that PPI brings 'different' perspectives to research decision-making spaces, based on what has been referred to as 'experiential expertise'. This article presents findings from a qualitative study of PPI in cancer research settings in England. We argue that participants highlighted specific forms of expertise in their accounts about involvement, above and beyond experiential expertise, which they felt legitimated their claims to be credible participants within cancer research settings. We report here on the various strategies by which participants sought to accomplish this and highlight, in particular, a concomitant process of 'professionalization' of some within our group of participants. We discuss the significance of these findings in the context of recent debates around the status of experiential expertise.

Entities:  

Mesh:

Year:  2012        PMID: 22535649     DOI: 10.1177/1363459312441008

Source DB:  PubMed          Journal:  Health (London)        ISSN: 1363-4593


  25 in total

1.  Addressing Deficits and Injustices: The Potential Epistemic Contributions of Patients to Research.

Authors:  Katrina Hutchison; Wendy Rogers; Vikki A Entwistle
Journal:  Health Care Anal       Date:  2017-12

2.  'A limpet on a ship': Spatio-temporal dynamics of patient and public involvement in research.

Authors:  Stan Constantina Papoulias; Felicity Callard
Journal:  Health Expect       Date:  2021-03-21       Impact factor: 3.377

3.  Exploring the impact of patient and public involvement in a cancer research setting.

Authors:  Jill Thompson; Paul Bissell; Cindy L Cooper; Chris J Armitage; Rosemary Barber
Journal:  Qual Health Res       Date:  2013-11-25

4.  What's in a "research passport"? A collaborative autoethnography of institutional approvals in public involvement in research.

Authors:  Vito Laterza; David Evans; Rosemary Davies; Christine Donald; Cathy Rice
Journal:  Res Involv Engagem       Date:  2016-06-22

5.  Power to the people: To what extent has public involvement in applied health research achieved this?

Authors:  Gill Green
Journal:  Res Involv Engagem       Date:  2016-08-17

Review 6.  The sociology of cancer: a decade of research.

Authors:  Anne Kerr; Emily Ross; Gwen Jacques; Sarah Cunningham-Burley
Journal:  Sociol Health Illn       Date:  2018-02-15

7.  How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation.

Authors:  Patricia Wilson; Elspeth Mathie; Fiona Poland; Julia Keenan; Amanda Howe; Diane Munday; Sally Kendall; Marion Cowe; Sophie Staniszewska; Claire Goodman
Journal:  J Health Serv Res Policy       Date:  2018-04

8.  Conceptualising and constructing 'diversity' through experiences of public and patient involvement in health research.

Authors:  Joanna Reynolds; Margaret Ogden; Ruth Beresford
Journal:  Res Involv Engagem       Date:  2021-07-22

9.  Involving service users in trials: developing a standard operating procedure.

Authors:  Bridie Angela Evans; Emma Bedson; Philip Bell; Hayley Hutchings; Lesley Lowes; David Rea; Anne Seagrove; Stefan Siebert; Graham Smith; Helen Snooks; Marie Thomas; Kym Thorne; Ian Russell
Journal:  Trials       Date:  2013-07-17       Impact factor: 2.279

Review 10.  A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory.

Authors:  Edel Tierney; Rachel McEvoy; Mary O'Reilly-de Brún; Tomas de Brún; Ekaterina Okonkwo; Michelle Rooney; Chris Dowrick; Anne Rogers; Anne MacFarlane
Journal:  Health Expect       Date:  2014-07-24       Impact factor: 3.377

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