Literature DB >> 22510161

Looking to the future: adolescents with cerebral palsy talk about their aspirations--a narrative study.

Amy Cussen1, Linsey Howie, Christine Imms.   

Abstract

PURPOSE: To explore the future hopes and aspirations of adolescents with cerebral palsy (CP) with a particular focus on their reflections on engagement in leisure activities.
METHOD: This qualitative study used narrative inquiry methodology. Ten adolescents, aged 14-16 years with CP and Manual Ability Classification System levels ranging from I-IV, were purposively sampled from a longitudinal study of leisure participation. Data were gathered during two face-face interviews conducted approximately 1 month apart. Between interviews, photographs were taken by the adolescents to represent their visions of their future aspirations. In accordance with narrative inquiry methodology, the results were presented as individual stories constructed by the researcher. These narratives were subsequently analysed to produce themes representing the participants' reflections on their future.
RESULTS: Three themes were developed: (i) Keeping close relationships, (ii) Choosing a future life of one's own, (iii) Leisure in the years ahead. All the adolescents had aspirations for education, work, leisure and living situation.
CONCLUSION: This study highlights the value of seeking information from adolescents with CP and suggests clinicians be aware of, and work to support their expectations for future study, employment and recreational engagement.

Entities:  

Mesh:

Year:  2012        PMID: 22510161     DOI: 10.3109/09638288.2012.672540

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  6 in total

1.  Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis.

Authors:  Allan Colver; Marion Rapp; Nora Eisemann; Virginie Ehlinger; Ute Thyen; Heather O Dickinson; Jackie Parkes; Kathryn Parkinson; Malin Nystrand; Jérôme Fauconnier; Marco Marcelli; Susan I Michelsen; Catherine Arnaud
Journal:  Lancet       Date:  2014-10-07       Impact factor: 79.321

2.  Optimizing life success through residential immersive life skills programs for youth with disabilities: study protocol of a mixed-methods, prospective, comparative cohort study.

Authors:  Amy C McPherson; Gillian King; Alanna Rudzik; Shauna Kingsnorth; Jan Willem Gorter
Journal:  BMC Pediatr       Date:  2016-09-06       Impact factor: 2.125

3.  Quality of Life and Self-Determination: Youth with Chronic Health Conditions Make the Connection.

Authors:  Janette McDougall; Patricia Baldwin; Jan Evans; Megan Nichols; Cole Etherington; Virginia Wright
Journal:  Appl Res Qual Life       Date:  2015-01-07

4.  Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities.

Authors:  Rackeb Tesfaye; Valerie Courchesne; Afiqah Yusuf; Tal Savion-Lemieux; Ilina Singh; Keiko Shikako-Thomas; Pat Mirenda; Charlotte Waddell; Isabel M Smith; David Nicholas; Peter Szatmari; Terry Bennett; Eric Duku; Stelios Georgiades; Connor Kerns; Tracy Vaillancourt; Anat Zaidman-Zait; Lonnie Zwaigenbaum; Mayada Elsabbagh
Journal:  Autism       Date:  2019-03-27

5.  Residential immersive life skills programs for youth with disabilities: a case study of youth developmental trajectories of personal growth and caregiver perspectives.

Authors:  Shauna Kingsnorth; Alanna E F Rudzik; Gillian King; Amy C McPherson
Journal:  BMC Pediatr       Date:  2019-11-06       Impact factor: 2.125

6.  Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population - SPARCLE 3 study protocol.

Authors:  Catherine Arnaud; Carine Duffaut; Jérôme Fauconnier; Silke Schmidt; Kate Himmelmann; Marco Marcelli; Lindsay Pennington; Joaquim Alvarelhão; Chirine Cytera; Marion Rapp; Virginie Ehlinger; Ute Thyen
Journal:  BMC Neurol       Date:  2021-06-30       Impact factor: 2.474

  6 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.